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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Ludwig Boltzmann Cluster Translationale Onkologie Resource Report Resource Website |
Ludwig Boltzmann Cluster Translationale Onkologie (RRID:SCR_000020) | Ludwig Boltzmann Cluster Translational Oncology | data or information resource, portal, topical portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. The projected cluster includes the LBIs for Applied Cancer Research, Clinical Oncology and Photodynamic Therapy, Gynecology and Gynecologic Oncology, Stem Cell Transplantation and Surgical Oncology. The aim of the projected cluster Translational Oncology is the cooperative investigation of genetic and molecular biological characteristics of the tumor cells involved in minimal residual disease (MRD) in vitro and translation of the experimental and diagnostic results into the clinical practice involving therapeutic modalities with the newest generation of antitumoral drugs. Minimal residual disease is the designation for the occurrence of a low number of tumor cells remaining clinically undetected following curative therapy that give rise to tumor relapses. MRD is a central question in cancer therapy, since a major subpopulation of patients which underwent curative resection and therapy ultimately relapse and would have received more aggressive adjuvant therapy, provided that residual disease had been clearly proven. Otherwise low-risk patients would have not been treated aggressively in an adjuvant setting. MRD can be detected by methods in bone marrow or by extremely sensitive PCR (polymerase-chain-reaction)-based methods in peripheral blood. PCR-based methods allow for the characterization of tumor-specific gene expression in circulating tumor cells and thereby provide additional information in regard to malignity of cells and prognosis. The different participating institutions have extensive experience in patient care, organization of clinical studies and laboratory investigation. In particular, expert knowledge in stem cell transplantation and histological detection of MRD, multicentric clinical testing of new anticancer drugs, specialized treatment of various selected tumor entities such as neuroendocrine tumors, gene expression analysis of circulating tumor cells and tumor signatures, and in vitro characterization of chemosensitivity as well as tumor cell biology have been acquired at the individual LBIs in the past and are complementary to each other to be combined in a larger cluster structure. The detection of circulating tumor cells will be supported by ongoing EU (OVCAD OVarian CAncer Diagnosis) and GenAU projects aiming at identification of ovarian cancer cells in the blood. The assessment of methylated DNA sequences (suppressor genes) in peripheral blood as an indicator of MRD can be performed with the help of OncoLab Diagnostics GmbH. Cooperative action in this cluster, using a common tumor bank/clinical data collection and the combined clinical and experimental efforts are the base for the execution of the presented MRD project. | cancer, tumor, clinical, oncology, photodynamic therapy, gynecology, gynecologic oncology, stem cell transplantation, surgical oncology, tumor cell | is parent organization of: Ludwig Boltzman Tumour Bank | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143958 | SCR_000020 | 2026-09-05 06:24:08 | 0 | ||||||||
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EPIGEN Resource Report Resource Website 10+ mentions |
EPIGEN (RRID:SCR_000093) | EPIGEN | consortium, data or information resource, organization portal, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on August 16,2023. Group of clinical care and epilepsy research centers who are committed to improving the lives of people with epilepsy through an understanding of the genetics of epilepsy. The consoritum was in an effort to speed discovery to epilepsy genetics by pooling the resources of several research centres., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | epilepsy, genetics, gene, mri, genetic variation, clinical |
has parent organization: Duke University; North Carolina; USA has parent organization: University College London; London; United Kingdom has parent organization: Beaumont Hospital; Dublin; Ireland has parent organization: Royal College of Surgeons in Ireland; Dublin; Ireland has parent organization: Free University of Brussels; Brussels; Belgium |
Epilepsy | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143740 | SCR_000093 | EPIGEN: An international consortium dedicated to tackling epilepsy through genetics, EPIGEN Consortium | 2026-09-05 06:24:12 | 24 | ||||||
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AETIONOMY Resource Report Resource Website 1+ mentions |
AETIONOMY (RRID:SCR_000232) | AETIONOMY | consortium, data or information resource, organization portal, portal | Consortium founded to establish mechanism-based taxonomies for Alzheimer's and Parkinson's disease and other neurodegenerative disorders (NDD), with the goal of facilitating development of more effective and targeted treatments. To do this, the consortium collects and analyzes data to: * Create new ways to combine underutilized data currently available in the literature, public databases, and from private companies * Determine how to dynamically organize and structure different types of knowledge about NDD * Determine how to apply this knowledge to construct new patient group classification * Identify correlations between disease features at molecular, tissue or organ-specific, and clinical levels * Identify sub-groups of patients based on the molecular cause of their disease, as opposed to the nature and location of their symptoms * Deliver data, tools, and recommendations for the biomedical community in the treatment of NDD A mechanism-based taxonomy is hoped to advance the: # Description and organization of the indication-specific data # Linking of data to disease models, based on causal and correlative relationships The expected outcome of AETIONOMY is a new NDD taxonomy system that distinguishes mixed pathologies, allowing for new features or classes to be added into the taxonomy, all with the goal of aiding drug and biomarker discovery. | drug development, drug, taxonomy, biomarker, etiology, epidemiology, neuroimaging, mechanism, clinical, clinical trial, database, classification, biological pathway, bio.tools |
is listed by: bio.tools is listed by: Debian has parent organization: Fraunhofer Institute for Algorithms and Scientific Computing SCAI; North Rhine-Westphalia; Germany |
IMI ; EFPIA |
nlx_157972, biotools:AETIONOMY | https://bio.tools/AETIONOMY | SCR_000232 | 2026-09-05 06:24:15 | 3 | |||||||
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EGAPP Resource Report Resource Website 1+ mentions |
EGAPP (RRID:SCR_004189) | EGAPP | data or information resource, portal, topical portal | Initiative to develop a systematic, evidence-based process for evaluating genetic tests and other applications of genomic technology that are rapidly moving from research to use in clinical practice. A key objective of this process is to provide objective, timely, and credible information that is clearly linked to the scientific evidence on specific applications of genetic and genomic tests. The primary focus of EGAPP activities is an independent, nonfederal expert panel, the EGAPP Working Group. Other components of the EGAPP initiative include a federal interagency, the CDC staff and consultants, and an EGAPP initiative evaluation team. | genetic test, genomics, clinical, genomic technology, evaluation, public health |
is listed by: OMICtools has parent organization: Centers for Disease Control and Prevention |
OMICS_01538 | SCR_004189 | Evaluation of Genomic Applications in Practice and Prevention (EGAPP), Evaluation of Genomic Applications in Practice and Prevention | 2026-09-05 06:25:16 | 1 | ||||||||
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Wellcome Images Resource Report Resource Website |
Wellcome Images (RRID:SCR_004181) | Wellcome Images | data or information resource, data repository, database, image collection, image repository, service resource, storage service resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 9, 2023.Digital collection of images, with themes ranging from medical and social history to contemporary healthcare and biomedical science. The collection contains historical images from the Wellcome Library collections, Tibetan Buddhist paintings, ancient Sanskrit manuscripts written on palm leaves, beautifully illuminated Persian books and much more. The Biomedical Collection holds over 40 000 high-quality images from the clinical and biomedical sciences. Selected from the UK''s leading teaching hospitals and research institutions, it covers disease, surgery, general healthcare, sciences from genetics to neuroscience including the full range of imaging techniques. They are always looking for new high quality biomedical images from scientific researchers, clinical photographers and artists in any field of science or medicine. As a contributor you retain your original material and copyright, and receive commission and full credit each time your images are used. The annual Wellcome Images awards (previously known as Biomedical Images Awards) reward contributors for their outstanding work and winners are chosen by a panel of experts. The resulting public exhibitions are always extremely popular and receive widespread acclaim. All images on the Wellcome Images site are available free for use in: * private study and non-commercial research * examination papers * criticism and review, this applies only where there are no multiple copies made * theses submitted by a student at a higher or further education institution for the purposes of securing a degree * personal use by private individuals | biomedical, clinical, disease, surgery, healthcare, genetics, neuroscience, imaging, science, medicine, history, painting, manuscript | Wellcome Trust | THIS RESOURCE IS NO LONGER IN SERVICE | r3d100010779, nlx_143611 | https://doi.org/10.17616/R3HS58 | SCR_004181 | 2026-09-05 06:25:16 | 0 | |||||||
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ECGpedia Resource Report Resource Website |
ECGpedia (RRID:SCR_004486) | ECGpedia | book, data or information resource, image, narrative resource, online course, training resource, video resource, wiki | Free online electrocardiography (ECG) course and textbook via a wiki where anyone can contribute and changes are supervised by physicians. Learn from cases and examples. It designed for medical professionals such as cardiac care nurses and physicians. All content is freely accessible. The information on this site should NOT be used as a substitute for the advice of an appropriately qualified and licensed physician or other health care provider. For questions like these we advise you to contact your physician. | heart, patient care, cardiology, electrocardiography, clinical | PMID:17322457 | Creative Commons Attribution-NonCommercial-ShareAlike License, With exceptions noted in the description, E.g., reproduced with permission from.... For these items you will have to ask the entity that holds the copyright. | nlx_47270 | SCR_004486 | ECGpedia.org | 2026-09-05 06:25:20 | 0 | |||||||
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ResearchInformatics.org Resource Report Resource Website |
ResearchInformatics.org (RRID:SCR_004487) | blog, community building portal, data or information resource, narrative resource, portal, wiki | An open-access portal for discussion, information sharing, and collaboration among those working to advance the rapidly developing field of clinical research informatics (CRI). We hope that you find the content useful and that you use our interactive features to contribute your knowledge and experience for the benefit of our community. Research Informatics.org Contents include: * CRI Initiatives * CRI News * CRI Events * CRI Resources * CRI Wiki * CRI Forum * CRI Blog | clinical informatics, medical informatics, translational research, informatics, clinical | nlx_47438 | SCR_004487 | Research Informatics.org, Clinical Research Informatics Wiki, CRI Wiki | 2026-09-05 06:25:20 | 0 | ||||||||||
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Vanator Resource Report Resource Website 1+ mentions |
Vanator (RRID:SCR_004370) | Vanator | software resource | A Perl pipeline utilising a large variety of common alignment, assembly and analysis tools to assess the metagenomic profiles of Illumina deep sequencing samples. The emphasis is on the discovery of novel viruses in clinical and environmental samples. | perl, metagenomic, illumina, alignment, assembly, analysis, profile, virus, clinical, environment, next-generation sequencing, taxonomy, read |
is listed by: OMICtools has parent organization: SourceForge has parent organization: University of Glasgow; Glasgow; United Kingdom |
PMID:23296970 | OMICS_01505 | SCR_004370 | Vanator-CVR, Vanator-CVR - A metagenomics & virus discovery pipeline, Virus Alignment de Novo Assembly and Taxonomy On Reads, Vanator-CVR: A metagenomics and virus discovery pipeline | 2026-09-05 06:25:18 | 2 | |||||||
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National Drug Abuse Treatment Clinical Trials Network Resource Report Resource Website |
National Drug Abuse Treatment Clinical Trials Network (RRID:SCR_004407) | CTN | clinical trial, consortium, data or information resource, organization portal, portal | A collaboration in which the National Institute on Drug Abuse, treatment researchers, and community-based service providers cooperatively develop, validate, refine, and deliver new treatment options to patients in Community Treatment Programs (CTPs). The partnership between CTPs and academic research leaders aims to achieve the following objectives: * Conducting studies of behavioral, pharmacological, and integrated behavioral and pharmacological treatment interventions of therapeutic effect in rigorous, multisite clinical trials to determine effectiveness across a broad range of community-based treatment settings and diversified patient populations; and * Ensuring the transfer of research results to physicians, clinicians, providers, and patients. The CTN, with its core of CTPs engaging diverse populations, is also designed to provide a platform for other studies, which would be funded under separate research grants. Three important ways to use the CTN are: to conduct ancillary studies in connection with CTN protocols; to utilize CTN Node facilities as a platform for investigations; and for Nodes to serve as home bases for NIH Training Centers and individual researchers who have NIH fellowships or career development awards. | drug of abuse, substance abuse, addiction, behavioral, clinical, clinical trial, pharmacological, therapy, treatment |
has parent organization: National Institute on Drug Abuse is parent organization of: NIDA Data Share |
nif-0000-00227 | SCR_004407 | NIDA CTN | 2026-09-05 06:25:19 | 0 | ||||||||
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TRACK TBI Network Resource Report Resource Website |
TRACK TBI Network (RRID:SCR_004723) | TRACK TBI Network | data or information resource, knowledge environment, narrative resource, standard specification | Network evaluating consensus-based common data elements (CDE) for traumatic brain injury (TBI) and psychological health (TBI-CDE, www.commondataelements.ninds.nih.gov/TBI.aspx) while extensively phenotyping a cohort of TBI patients across the injury spectrum from concussion to coma. Institutions that participate in the TBI Network will be able to track the outcomes of patients through a 3, 6 and 12-month followup program and compare outcomes with other participating institutions. For the three acute care centers, patients were enrolled that presented to the emergency department within 24 hours of head injury and required computed tomography (CT). For the rehabilitation center, referrals from acute hospitals were enrolled. Patients were consented to participate in components: clinical profile; blood draws for measurement of proteomic and genomic markers; 3T MRI within 2 weeks; three-month Glasgow Outcome Scale-Extended (GOS-E); and six-month TBI-CDE Core outcome assessments. A web-enabled database, imaging repository, and biospecimen bank was developed using the TBI-CDE recommendations. A total of 605 patients were enrolled. Of these subjects, 88% had a GCS 13-15, 5% had a GCS 9-12, and 7% had a GCS of 8 or less. Three-month GOS-E''s were obtained for 78% of the patients. Comprehensive 6-month outcome measures, including PTSD assessment, are ongoing until September 2011. Blood specimens were collected from 450 patients. Initial CTs for 605 patients and 235 patients with 3T MRI studies were transferred to an imaging repository. The TRACK TBI Network will provide qualified institutions access to a web-based version of key forms in tracking TBI outcomes for Quality Improvement and institutional benchmarking. | traumatic brain injury, concussion, coma, psychological health, common data element, head injury, mri, computed tomography, post-traumatic stress disorder, clinical, neuroimage, genomic, proteomic, outcome data, clinical data, marker, blood, glasgow outcome scale-extended, one mind tbi, one mind ptsd, image, image collection, benchmark, biomaterial supply resource, database, outcome | is listed by: One Mind Biospecimen Bank Listing | Traumatic brain injury | NINDS ; NIDRR ; Defense and Veterans Brain Injury Center ; Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury |
Access to a web-based version of key forms is available to qualified institutions. | nlx_143882 | http://www.tracktbi.net/tracktbi/ | SCR_004723 | Traumatic Brain Injury Network, Transforming Research and Clinical Knowledge in Traumatic Brain Injury Network, TBI Network, Transforming Research and Clinical Knowledge in Traumatic Brain Injury: Multicenter Implementation of the TBI Common Data Elements | 2026-09-05 06:25:23 | 0 | ||||
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Brain and Body Donation Program Resource Report Resource Website 100+ mentions |
Brain and Body Donation Program (RRID:SCR_004822) | BBDP | biomaterial supply resource, brain bank, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. An autopsy-based, research-devoted brain bank, biobank and biospecimen bank that derives its human donors from the Arizona Study of Aging and Neurodegenerative Disease (AZSAND), a longitudinal clinicopathological study of the health and diseases of elderly volunteers living in Maricopa county and metropolitan Phoenix, Arizona. Their function is studied during life and their organs and tissue after death. To date, they have concentrated their studies on Alzheimer's disease, Parkinson's disease, heart disease and cancer. They share the banked tissue, biomaterials and biospecimens with qualified researchers worldwide. Registrants with suitable scientific credentials will be allowed access to a database of available tissue linked to relevant clinical information, and will allow tissue requests to be initiated., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | brain, late adult human, autopsy, mini mental state examination, neuropathological data, medical history, organ, tissue, brain, blood serum, cerebral spinal fluid, clinical, FASEB list |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Banner Sun Health Research Institute |
Aging, Age-related disease, Alzheimer's disease, Parkinson's disease, Arthritis, Prostate cancer, Neurodegenerative disease, Cancer, Progressive supranuclear palsy, Hippocampal sclerosis, Vascular dementia, Dementia with Lewy bodies, Multiple system atrophy, Motor neuron disease, Frontotemporal lobar dementia, Corticobasal degeneration, Dementia, Cerebrovascular disease, Atherosclerosis, Renal hypertensive disease, Fatty liver, Type II diabetes | Michael J. Fox Foundation for Parkinson's Research ; Sun Health Foundation |
PMID:25619230 PMID:33143239 |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_80798 | http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Research/Research+Programs/Brain+and+Body+Donation/Brain+and+Tissue+Bank.htm | http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Ways+to+Give/Brain+and+Tissue/_Brain+and+Tissue.htm, http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Research/Research+Programs/Brain+and+Tissue/_Brain+and+Tissue.htm | SCR_004822 | Banner Sun Health Research Institute Brain and Tissue Bank, Banner Health Brain and Tissue Bank, Brain / Body Donation Program, Banner Brain and Tissue Bank, Banner Sun Health Research Institute Brain and Body Donation Program, Brain/Body Donation Program | 2026-09-05 06:25:25 | 121 | ||
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Cliniques Universitaires Saint-Luc Cancer Centre Resource Report Resource Website |
Cliniques Universitaires Saint-Luc Cancer Centre (RRID:SCR_004922) | Cliniques Universitaires Saint-Luc Cancer Centre | data or information resource, portal, topical portal, training resource | An essential reference center in Europe and a leader in French-speaking Belgium that treats all types of adult and childhood cancer. They fight against cancer while giving patients comprehensive and humane care. Their quest for excellence is in three main academic fields: clinical care, research and teaching. | cancer, adult human, child, clinical, oncology, research, young human | is parent organization of: Saint-Luc Tumour Bank | Cancer | nlx_143961 | http://www.centreducancer.be/en | SCR_004922 | Centre du Cancer Cliniques Universitaires St-Luc, Cliniques Universitaires Saint-Luc Cancer Center | 2026-09-05 06:25:26 | 0 | ||||||
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DermAtlas. Resource Report Resource Website 1+ mentions |
DermAtlas. (RRID:SCR_004977) | DermAtlas | data or information resource, data repository, database, image, service resource, storage service resource | Database of dermatology cases and browsable by diagnosis, category or body site with 12,176 images, 583 contributors and dermatology links. You may retrieve images using any diagnosis, disease category, body site, pigmentation, image contributor, patient age, image name, and/or key words. You are welcome submit images or to download images for lectures and other teaching purposes - or with permission for other uses. Additionally, you may search DermAtlas from your website. Add YOUR Link On the DermAtlas'''' Add a Link Page you can associate your link with as many diagnoses as you like. Case submission If you have a high quality image that you would like to submit to DermAtlas, submit the requested information, and upload the image. The data and image will automatically be sent to the editors for review. You will be notified within one week of submission of images. In order for an image to be considered for inclusion into this collection, consent must be obtained from the patient or his/her legal guardian. Contributors are solely responsible for obtaining consent. | source code, continuing medical education, dermatology, skin, disease, skin lesion, clinical |
is related to: MeSH has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA |
Dermatological condition | PMID:15360820 | May download images for lectures and other teaching purposes - or with permission for other uses. | nlx_93671 | http://www.dermatlas.org/ | SCR_004977 | Dermatology Image Atlas | 2026-09-05 06:25:27 | 2 | ||||
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Competence Network Heart Failure Resource Report Resource Website |
Competence Network Heart Failure (RRID:SCR_004979) | CNHF | community building portal, data or information resource, portal, topical portal | Association of physicians, scientists, academics, research institutes and self-help groups that provides and nurtures interdisciplinary cooperation between research and primary, secondary and tertiary health care. Many internationally renowned heart failure researchers and working groups live and work in Germany. Nevertheless, there is insufficient cooperation of the respective working groups and research projects in this area. In order to remain internationally competitive in the heart failure research community, excellent implementation of large scale clinical and genetic trials is indispensable. Further, deficits in the effective presentation and transfer of research findings into clinical practice need to be addressed. An adequate translation of guidelines into practical, tangible instructions can facilitate clinical practice both in primary and tertiary care fundamentally. The need for action to address the research-practice-gap is obvious. | heart failure, cardiology, clinical, genetic, genetic trial, clinical trial | is parent organization of: Central Biomaterial Bank - German Heart Failure Network | German Federal Ministry of Research and Education | nlx_143991 | http://www.knhi.de/en/Network/index.jsp | SCR_004979 | German Competence Network Heart Failure | 2026-09-05 06:25:27 | 0 | ||||||
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Ivy Glioblastoma Atlas Project Resource Report Resource Website 100+ mentions |
Ivy Glioblastoma Atlas Project (RRID:SCR_005044) | Ivy GAP | atlas, data or information resource, database, image collection | Platform for exploring the anatomic and genetic basis of glioblastoma at the cellular and molecular levels that includes two interactive databases linked together by de-identified tumor specimen numbers to facilitate comparisons across data modalities: * The open public image database, here, providing in situ hybridization data mapping gene expression across the anatomic structures inherent in glioblastoma, as well as associated histological data suitable for neuropathological examination * A companion database (Ivy GAP Clinical and Genomic Database) offering detailed clinical, genomic, and expression array data sets that are designed to elucidate the pathways involved in glioblastoma development and progression. This database requires registration for access. The hope is that researchers all over the world will mine these data and identify trends, correlations, and interesting leads for further studies with significant translational and clinical outcomes. The Ivy Glioblastoma Atlas Project is a collaborative partnership between the Ben and Catherine Ivy Foundation, the Allen Institute for Brain Science and the Ben and Catherine Ivy Center for Advanced Brain Tumor Treatment. | glioblastoma, in situ hybridization, hematoxylin and eosin stain, brain, tumor, gene expression, anatomic structure, histology, clinical, genomic, expression array, gene, FASEB list | has parent organization: Allen Institute for Brain Science | Brain cancer, Cancer | Ben and Catherine Ivy Foundation | nlx_99161 | SCR_005044 | 2026-09-05 06:25:28 | 158 | |||||||
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Florida Alzheimer's Disease Research Center Resource Report Resource Website |
Florida Alzheimer's Disease Research Center (RRID:SCR_004940) | FADRC | data or information resource, disease-related portal, portal, topical portal | A statewide consortium dedicated to Alzheimer's disease research to better understand the disease and related memory disorders. It includes Alzheimer's researchers and clinicians from institutions across Florida such as USF Health, Mayo Clinic Jacksonville, and Mount Sinai Medical Center. The purpose of the ADRC is to assist institutions in developing an infrastructure (cores) that can be used for various research projects with the goal of better understanding Alzheimer's disease and related disorders. The Florida ADRC is comprised of six cores, three projects and three pilot projects among other collaborations that utilize these cores. | disease related portal, alzheimer's disease, memory disorder, dementia, clinical, late adult human |
is related to: Alzheimers Disease Genetics Consortium has parent organization: University of South Florida; Florida; USA is parent organization of: Mayo Clinic Jacksonville: Neuropathology and Microscopy |
Alzheimer's disease, Memory disorder, Dementia, Mild cognitive impairment | NIA RFA-AG-04-011 | Contact the core ADRC Administrator to use Florida ADRC cores | nlx_143954 | SCR_004940 | Florida ADRC, Florida Alzheimer's Disease Research Center | 2026-09-05 06:25:26 | 0 | |||||
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National Institutes of Neurological Disorders and Stroke: Research Funding Resource Report Resource Website |
National Institutes of Neurological Disorders and Stroke: Research Funding (RRID:SCR_012874) | funding resource | Research funding for basic and clinical neuroscience trials to help train investigators and better understand diagnosis, treatment, and prevention of neurological disorders. Funds are allocated by Congress on a yearly basis. | epilepsy, epileptic seizure, funding resource, craniocervical injury, grant, grants, nervous system injury, nervous system trauma, neural stem cell, paralysis agitans, parkinson's, parkinson's disease, parkinson syndrome, seizure disorder, traumatic brain injury, research, funding, clinical, neuroscience, basic, trials | Available to the research community | nif-0000-01869 | SCR_012874 | NINDS Research Funding | 2026-09-05 06:27:28 | 0 | |||||||||
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Traumatic Brain Injury Clinical Trials Network Resource Report Resource Website |
Traumatic Brain Injury Clinical Trials Network (RRID:SCR_013165) | TBI Clinical Trials Network | data or information resource, disease-related portal, knowledge environment, portal, research forum portal, topical portal | The National Center for Medical Rehabilitation Research (NCMRR) established a multi-center network of sites that are working together to design clinical intervention protocols and measures of outcome for TBI. Through rigorous patient evaluation, using common protocols and interventions designed for multiple points of care����??including the accident scene, emergency room, intensive care unit, rehabilitation and long-term follow-up����??the NCMRR TBI Clinical Trials Network can study the required numbers of patients to provide answers more rapidly than individual centers acting alone. This interdisciplinary research Network is designed to evaluate the relationship among acute care practice, rehabilitation strategies, and the long-term functional outcome of TBI patients����??that is, to identify which intervention variables result in improvements in long-term outcomes. Taking advantage of the network model structure has allowed TBI research to progress toward a number of clinical research goals. Specifically, the NCMRR wants to highlight two major achievements to date. First, the TBI Network created a profile of its typical patient to determine the number of patients with different clinical features who might be eligible for future studies and to help estimate recruitment times necessary. Second, Network researchers are developing clinical treatment guidelines and procedures for all points in the continuum of care, including TBI Clinical Trials Network Guidelines for surgical care, systems-based protocol for severe and moderate TBI patients, deep-vein thrombosis prophylaxis procedures, and rehabilitation guidelines for physical therapy, speech-language pathology, occupational therapy, and neuropsychology. | traumatic brain injury, clinical, research, clinical trial, outcome, intervention, one mind tbi | has parent organization: National Institute of Child Health and Human Development | Traumatic Brain Injury | NCMRR | nlx_143904 | http://www.nichd.nih.gov/research/supported/TBI.cfm | SCR_013165 | NCMRR TBI Clinical Trials Network, Traumatic Brain Injury (TBI) Clinical Trials Network | 2026-09-05 06:27:32 | 0 | |||||
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Kennedy Krieger Institute: Diagnoses/Disorders Resource Report Resource Website |
Kennedy Krieger Institute: Diagnoses/Disorders (RRID:SCR_013260) | data or information resource, organization portal, portal, training resource | Kennedy Krieger Institute is an institution dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. Kennedy Kriegers clinical programs offer an interdisciplinary approach in treatment tailored to the individual needs of each child. Services include over 40 outpatient clinics; neurobehavioral, rehabilitation, and pediatric feeding disorders inpatient units; plus several home and community programs providing services to assist families. At Kennedy Krieger, there is no shortage of clinical programs to meet the specialized needs of children and adolescents with developmental disabilities. More than 35 different outpatient clinics, three inpatient units, several home and community programs and clinical laboratories all address the specific conditions of children with a wide range of disorders. Kennedy Krieger is recognized for its range of services in areas including autism, cerebral palsy, spina bifida, neurorehabilitation and feeding disorders. Kennedy Krieger school, is a nationally recognized Blue Ribbon School of Excellence, and is a leader in providing model programs of innovative education for children, adolescents and young adults with a wide range of learning, emotional, physical, neurological, and developmental disabilities. Faculty at Kennedy Krieger are among some of the worlds leading experts in this field and are attuned to the special needs of this population. These faculty have made crucial medical discoveries leading to innovative treatments and have improved the lives of individuals with disabilities. In addition to providing evaluation, rehabilitation, educational services and cutting edge research on behalf of children with brain related disabilities, Kennedy Krieger also provides professional training by renowned experts dedicated to increasing the number of qualified specialists in the United States and abroad. Children treated at Kennedy Krieger are seen by a variety of health care professionals working together in one or more of the Institutes clinical disciplines or departments. These highly trained professionals work directly with the Institutes medical staff to provide coordinated, interdisciplinary care tailored to the special needs of each child. This interdisciplinary approach puts Kennedy Krieger at the forefront in providing patient care for individuals with multiple developmental disabilities. Additionally, Kennedy Krieger Institutes Department of Special Education includes a number of programs that offer service to children with disabilities in a variety of settings. Kennedy Krieger School programs offer special education and related services to students aged 3-21 in three day-school settings and in partnership settings within public schools. For your convenience, a list of diagnoses/disorders treated at Kennedy Krieger Institute has been compiled to provide helpful related information for each diagnosis/disorder and include definitions, symptoms, treatment programs available at Kennedy Krieger, research being conducted at Kennedy Krieger, press releases, Potential articles and links to other helpful additional resources and websites outside the Institute. | emotional, adolescent, care, clinical, developmental disorder, disability, disorder, neurobehavioral, neurological, neurorehabitlitation, outpatient, patient, pediatric, pervasive, physical, prematurity, psychiatric, rehabilitation, research, self-injurious behavior, special education, paralysis, adrenoleukodystrophy, ald, ataxia telangiectasia, at, attention deficit disorder, add, autism spectrum disorder, asd, pervasive developmental disorder, pdd, barth syndrome, behavioral disorder, self-injurious behavior, brachial plexus injury, bpi, birth defect, brain injury, brain malformation, brain tumor, cerebral palsy, cp, communication disorder, speech disorder, language disorder, developmental disability, down syndrome, encephalitis, epilepsy, seizure disorder, feeding disorder, fetal alcohol syndrome, fas, fragile x syndrome, genetic disorder, hearing impairment, holoprosencephaly, hpe, lead poisoning, learning disorder, intellectual disability, metabolic disorder, mitochondrial disorder, movement disorder, neurodegenerative disorder, neurological disorder, osteogenesis imperfecta, psychiatric disorder, rett syndrome, skeletal disorder, sleep disorder, smith-lemli-opitz syndrome, spina bifida, sturge-weber syndrome | has parent organization: Kennedy Krieger Institute | nif-0000-10275 | SCR_013260 | KKI Diagnoses/Disorders | 2026-09-05 06:27:34 | 0 | |||||||||
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Northwestern University Schizophrenia Data and Software Tool (NUSDAST) Resource Report Resource Website |
Northwestern University Schizophrenia Data and Software Tool (NUSDAST) (RRID:SCR_014153) | NUSDAT | data or information resource, database, image collection | A repository of schizophrenia neuroimaging data collected from over 450 individuals with schizophrenia, healthy controls and their respective siblings, most with 2-year longitudinal follow-up. The data include neuroimaging data, cognitive data, clinical data, and genetic data. | database, neuroimaging, clinical, cognitive, genetic, schizophrenia, longitudinal |
uses: CAWorks is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: Northwestern University; Illinois; USA |
Schizophrenia | NIMH 1R01 MH084803; NIMH 1U01 MH097435; NIMH P50 MH071616; NIMH R01 MH056584; NCRR P41 RR15241; NIGMS U24 GM104203; NIH Bio-Informatics Research Network Coordinating Center |
Available to the research community | SCR_014153 | Northwestern University Schizophrenia Data and Software Tool | 2026-09-05 06:27:43 | 0 |
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Welcome to the dkNET Resources search. From here you can search through a compilation of resources used by dkNET and see how data is organized within our community.
You are currently on the Community Resources tab looking through categories and sources that dkNET has compiled. You can navigate through those categories from here or change to a different tab to execute your search through. Each tab gives a different perspective on data.
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