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Resource Name Proper Citation Abbreviations Resource Type Description Keywords Resource Relationships Related Condition Funding Defining Citation Availability Specification URL Alternate IDs Alternate URLs Old URLs Parent Organization Resource ID Synonyms Record Last Update Mentions Count
Retinal wave repository
 
Resource Report
Resource Website
Retinal wave repository (RRID:SCR_010462) Retinal wave repository data or information resource, data set A subset of the CARMEN repository, a curated set of data and code of multielectrode array recordings of spontaneous activity in developing mouse and ferret retina. The data have been annotated with minimal metadata and converted into HDF5 (Hierarchical data format, version 5) including the essential features of the recordings, such as developmental age, and genotype. All code and tools used in the analyses are also fully available for reuse, giving the ability to regenerate each figure and table and know exactly how the results were calculated, adding confidence in the research output and allowing others to easily build upon previous work. The addition of published data to the repository is encouraged. hdf5, development, neural circuit, retina, eye, multielectrode, array recording, spontaneous activity, reproducible research, retinal wave, electrophysiology, multielectrode array, developmental age, genotype has parent organization: GigaScience
has parent organization: Code Analysis Repository and Modelling for e-Neuroscience
has parent organization: University of Cambridge; Cambridge; United Kingdom
Developing retina, Aging EPSRC EP/E002331/1;
BBSRC BB/H023577/1;
BBSRC BB/I000984/1;
Wellcome Trust 083205/B/07/Z
PMID:24666584 Registration required, (CARMEN), Acknowledgement required, The community can contribute to this resource nlx_157664 http://www.damtp.cam.ac.uk/user/eglen/waverepo/ SCR_010462 A data repository and analysis framework for spontaneous neural activity recordings in developing retina 2026-09-05 06:33:44 0
GLOBOCAN
 
Resource Report
Resource Website
500+ mentions
GLOBOCAN (RRID:SCR_012750) data or information resource, data set The aim of the project is to provide contemporary estimates of the incidence of, mortality and prevalence from major types of cancer, at national level, for 184 countries of the world. The GLOBOCAN estimates are presented for 2012, separately for each sex. 1-, 3- and 5-year prevalence data are available for the adult population only (ages 15 and over). Please note that: These estimates are based on the most recent data available at IARC and on information publically available on the Internet, but more recent figures may be available directly from local sources. Because the sources of data are continuously improving in quality and extent, estimates may not be truly comparable overtime and care should be taken when comparing these estimates with those published earlier. The observed differences may be the result of a change in the methodology and should not be interpreted as a time trend effect. Aging nlx_156894 SCR_012750 2026-09-05 06:33:58 530
National Survey of Self-Care and Aging
 
Resource Report
Resource Website
National Survey of Self-Care and Aging (RRID:SCR_013456) NSSCA data or information resource, data set Data set on the prevalence of self-care behaviors by non-institutionalized older adults. Personal interviews were conducted with 3,485 individuals 65 years of age and older, with oversampling of the oldest old. Questions were asked about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), medical self-care for acute conditions, health promotion/disease preventions, social support, health service utilization, and socio-demographic/economic status. A follow-up study by telephone was conducted in 1994 to continue examination of subjects. Many of the same questions from the baseline were asked, along with questions regarding change in health status since baseline and nursing home visits. For subjects who had been institutionalized since baseline (Part 2), information was gathered (by proxy) regarding demographic status, living arrangements prior to institutionalization, and reasons for institutionalization. For subjects who had died since baseline (Part 3), information was again gathered through interviews with proxies. Questions covered nursing home admissions and date and place of death. In both waves, a proxy was substituted if the subject was hospitalized (or institutionalized since baseline), too ill, cognitively not able to respond, or deceased. Survey data were linked to Medicare/Medicaid health utilization records. The baseline data are archived at NACDA as ICPSR Study No. 6718, and the followup data are archived as ICPSR Study No. 2592 and linkable to the baseline data. * Dates of Study: 1990-1994 * Study Features: Longitudinal * Sample Size: ** 1990-1: 3,485 (Baseline) ** 1994: 2,601 (Followup) Links: * 1990-1991 Baseline ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06718 * 1994 Follow-up ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02592 late adult human, longitudinal, interview, self-care, daily living, behavior, chronic condition, medical, health promotion, disease prevention, social support, health service utilization, socio-demographic, economic, self medication, assisted living, assistive device, chronic illness, health status, institutional care, living arrangement, quality of life is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: National Archive of Computerized Data on Aging (NACDA)
has parent organization: University of North Carolina at Chapel Hill; North Carolina; USA
Aging, Non-institutionalized NIA AG07929-3;
NIA 5-P20-AG09648-06
Public nlx_152056 SCR_013456 National Survey of Self-Care and Aging 2026-09-05 06:33:59 0
National Survey of Families and Households
 
Resource Report
Resource Website
1+ mentions
National Survey of Families and Households (RRID:SCR_013388) NSFH data or information resource, data set A national sample survey dataset covering a wide variety of issues on American family life beginning in 1987-88 and at two subsequent timepoints1992-93 and 2001-03. Topics covered included detailed household composition, family background, adult family transitions, couple interactions, parent-child interactions, education and work, health, economic and psychological well-being, and family attitudes. The first wave interviewed 13,017 respondents, including a main cross-section sample of 9,643 persons aged 19 and over plus an oversample of minorities and households containing single-parent families, step-families, recently married couples, and cohabiting couples. In each household, a randomly selected adult was interviewed. In addition, a shorter, self-administered questionnaire was filled out by the spouse or cohabiting partner of the primary respondent. Interviews averaged about 100 minutes, although interview length varied considerably with the complexity of the respondent''s family history. In 1992-94, an in-person interview was conducted of all surviving members of the original sample, the current spouse or cohabiting partner, and with the baseline spouse or partner in cases where the relationship had ended. Telephone interviews were conducted with focal children who were aged 5-12 and 13-18 at baseline. Short proxy interviews were conducted with a surviving spouse or other relative in cases where the original respondent died or was too ill to interview. A telephone interview was conducted with one randomly selected parent of the main respondent. In 2001-03, telephone interviews were conducted with: Surviving members of the original respondents who had a focal child age 5 or over at baseline; the baseline spouse/partner of these original respondents, whether or not the couple was still together; the focal children who were in the household and aged 5-18 at baselinemost of whom were interviewed at wave 2; and all other original respondents age 45 or older in 2000, and their baseline spouse/partner. Oversamples: Blacks, 9.2%; Mexican-Americans, 2.4%; Puerto Ricans, 0.7% * Dates of Study: 1987-2003 * Study Features: Longitudinal, Minority Oversampling * Sample Size (original respondents): ** Wave I (1987-88): 13,017 ** Wave II (1992-93): 10,007 ** Wave III (2001-03): 8,990 Links: * Wave I (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06041 * Wave II (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06906 * Wave III (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00171 longitudinal, minority, african-american, mexican-american, puerto rican, household, couple interaction, parent-child interaction, education, work, health, economic, psychological well-being, family attitude, living arrangement, childhood, marriage, cohabitation, fertility, employment, interview, family, questionnaire, divorce, adoption, child custody, step-family, parent, child, 1adolescent, in-law, wage, self-employment, income, interest, dividend, investment, pension, social security, public assistance, alimony, marital status, adoption, child custody, child support, divorce, family life, family structure, social contact, step-family, salary, adult, married, survey, single parent, stepchild, cohabiting person, spouse is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: University of Wisconsin-Madison; Wisconsin; USA
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging, Married, Adult NIA ;
NICHD ;
U.S. Department of Health and Human Services
Public nlx_151869 SCR_013388 National Survey of Families and Households (NSFH) 2026-09-05 06:33:59 1
German Socio-Economic Panel
 
Resource Report
Resource Website
1+ mentions
German Socio-Economic Panel (RRID:SCR_013140) GSOEP data or information resource, data set A wide-ranging representative longitudinal study of private households that permits researchers to track yearly changes in the health and economic well-being of older people relative to younger people in Germany from 1984 to the present. Every year, there were nearly 11,000 households, and more than 20,000 persons sampled by the fieldwork organization TNS Infratest Sozialforschung. The data provide information on all household members, consisting of Germans living in the Old and New German States, Foreigners, and recent Immigrants to Germany. The Panel was started in 1984. Some of the many topics include household composition, occupational biographies, employment, earnings, health and satisfaction indicators. In addition to standard demographic information, the GSOEP questionnaire also contains objective measuresuse of time, use of earnings, income, benefit payments, health, etc. and subjective measures - level of satisfaction with various aspects of life, hopes and fears, political involvement, etc. of the German population. The first wave, collected in 1984 in the western states of Germany, contains 5,921 households in two randomly sampled sub-groups: 1) German Sub-Sample: people in private households where the head of household was not of Turkish, Greek, Yugoslavian, Spanish, or Italian nationality; 2) Foreign Sub-Sample: people in private households where the head of household was of Turkish, Greek, Yugoslavian, Spanish, or Italian nationality. In each year since 1984, the GSOEP has attempted to re-interview original sample members unless they leave the country. A major expansion of the GSOEP was necessitated by German reunification. In June 1990, the GSOEP fielded a first wave of the eastern states of Germany. This sub-sample includes individuals in private households where the head of household was a citizen of the German Democratic Republic. The first wave contains 2,179 households. In 1994 and 1995, the GSOEP added a sample of immigrants to the western states of Germany from 522 households who arrived after 1984, which in 2006 included 360 households and 684 respondents. In 1998 a new refreshment sample of 1,067 households was selected from the population of private households. In 2000 a sample was drawn using essentially similar selection rules as the original German sub-sample and the 1998 refreshment sample with some modifications. The 2000 sample includes 6,052 households covering 10,890 individuals. Finally, in 2002, an overrepresentation of high-income households was added with 2,671 respondents from 1,224 households, of which 1,801 individuals (689 households) were still included in the year 2006. Data Availability: The data are available to researchers in Germany and abroad in SPSS, SAS, TDA, STATA, and ASCII format for immediate use. Extensive documentation in English and German is available online. The SOEP data are available in German and English, alone or in combination with data from other international panel surveys (e.g., the Cross-National Equivalent Files which contain panel data from Canada, Germany, and the United States). The public use file of the SOEP with anonymous microdata is provided free of charge (plus shipping costs) to universities and research centers. The individual SOEP datasets cannot be downloaded from the DIW Web site due to data protection regulations. Use of the data is subject to special regulations, and data privacy laws necessitate the signing of a data transfer contract with the DIW. The English Language Public Use Version of the GSOEP is distributed and administered by the Department of Policy Analysis and Management, Cornell University. The data are available on CD-ROM from Cornell for a fee. Full instructions for accessing GSOEP data may be accessed on the project website, http://www.human.cornell.edu/che/PAM/Research/Centers-Programs/German-Panel/cnef.cfm * Dates of Study: 1984-present * Study Features: Longitudinal, International * Sample Size: ** 1984: 12,290 (GSOEP West) ** 1990: 4,453 (GSOEP East) ** 2000: 20,000+ Links: * Cornell Project Website: http://www.human.cornell.edu/che/PAM/Research/Centers-Programs/German-Panel/cnef.cfm * GSOEP ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00131 longitudinal, international, education, family background, health, household composition, job history, life satisfaction, living condition, occupational mobility, late adult human, political change, social change, social indicator, social security, social service, time utilization, wage, salary, economic well-being, questionnaire, survey is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: Cross-National Equivalent Files
has parent organization: German Institute of Economic Research; Berlin; Germany
has parent organization: Cornell University; New York; USA
Aging NIA ;
German Federal Government ;
State of Berlin ;
BMBF ;
DFG
Public nlx_151827 SCR_013140 German Socio-Economic Panel (GSOEP), German Socio-Economic Panel (SOEP), German SOEP 2026-09-05 06:33:59 1
Epidemiology of Chronic Disease in the Oldest Old
 
Resource Report
Resource Website
Epidemiology of Chronic Disease in the Oldest Old (RRID:SCR_013466) Epidemiology of Chronic Disease in the Oldest Old data or information resource, data set A collection of data of an epidemiological study of chronic disease in the oldest old based on information collected from Kaiser Permanente facilities in Northern California (KPNC). The initial sample was drawn from the Kaiser''s active membership lists for the years 1971 and 1980. The sample was restricted to members that had a Multiphasic Health Checkup examination (MHC) within 7 years of the baseline date. The sample was stratified to attain equal numbers of observations (1,000 in each) in three sex-age cells for each cohort: 65-69, 70-79, and 80+. Each cohort was followed for 9 years through existing medical records and computerized hospitalization tapes. Mortality data was collected by matching the sampled data with state Vital Statistics data for an additional 3 years for a total follow-up time of 12 years. Part 1 of the data collections consists of Master Records, which includes information from the morbidity review, in which over 35 chronic conditions or diagnoses were abstracted from the member charts, as well as detailed diagnostic criteria for the major conditions. A prevalence review was done, which included the 4 years prior to the baseline date for these same conditions. Recurrent disease is included for the following conditions: cancers, myocardial infarction, and various forms of strokes. A detailed account of outpatient health services use, and data from the multiphasic health checkup, which was administered to each participant during the nine yearly follow-ups, are also included in the Master Records file. The labs and procedures included: chemistry, hematology, urinalysis, bacteriology, chest x-ray, GI x-ray, ultrasound, CT/MRI, mammogram, resting ECG, treadmill ECG, echocardiograms, nuclear scans, outpatient breast biopsy, cystoscopy, and cataract surgery. Inpatient utilization includes all hospitalizations, procedures done during a hospital stay, length of stay, admitting/discharge diagnosis. Part 2, Hospitalization, contains records of causes and dates of hospitalizations and discharges and nursing home admissions. There is also a section on incomplete reviews and the reasons for them. Demographic information and some lifestyle information from the multiphasic health checkup (e.g., smoking, alcohol, and Body Mass Index) are also in this file. Data Availability: These datasets have been documented extensively and are available from the ICPSR (Study No. 4219). * Dates of Study: 1971-1992 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1971 cohort: 2,877 (baseline) ** 1980 cohort: 3,113 (baseline) ** 1971 & 1980: 5,990 ** Hospitalization: 14,730 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04219 * HSRR: http://wwwcf.nlm.nih.gov/hsrr_search/view_hsrr_record_table.cfm?TITLE_ID=381&PROGRAM_CAME=toc_with_source2.cfm late adult human, kaiser permanente, male, female, chronic disease, elderly, longevity, epidemiology, ambulatory care, cause of death, death, disease, doctor visit, health, health care, hospitalization, illness, medical evaluation, medical record, morbidity, questionnaire, hematology, urinalysis, bacteriology, chest x-ray, gi x-ray, ultrasound, ct, mri, mammogram, resting ecg, treadmill ecg, echocardiogram, nuclear scan, outpatient, breast biopsy, cystoscopy, cataract surgery is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: University of California at Davis; California; USA
has parent organization: National Library of Medicine
Aging NIA Public nlx_151824 SCR_013466 Kaiser Permanente Study of the Oldest Old 2026-09-05 06:33:59 0
Aging Dementia and Traumatic Brain Injury Study
 
Resource Report
Resource Website
10+ mentions
Aging Dementia and Traumatic Brain Injury Study (RRID:SCR_014554) data or information resource, data set The Aging, Dementia and Traumatic Brain Injury Study is a detailed neuropathologic, molecular and transcriptomic characterization of brains of control and TBI exposure cases from a unique aged population-based cohort from the Adult Changes in Thought (ACT) study. The study contains six data sets: histology and immunohistochemistry, in situ hybridization, rna-seq, protein quantification by luminex, isoprostane quantification, and specimen metadata. aging, dementia, traumatic brain injury, study, data set, histology, immunohistochemistry, in situ, hybridization, rna seq, protein quantification, isoprostane quantification, specimen, metadata, human has parent organization: Allen Institute for Brain Science
has parent organization: University of Washington; Seattle; USA
Aging, Dementia, Traumatic brain injury Paul G. Allen Family Foundation Available to the research community SCR_014554 Aging Dementia and TBI Study 2026-09-05 06:33:59 28
Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB)
 
Resource Report
Resource Website
Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) (RRID:SCR_004327) RD-HUB biomaterial supply resource, material resource A database of biospecimens collected, stored, and distributed by biorepositories in the United States and around the globe. Its goals are: To help and assist interested parties and investigators search, locate, and identify desired biospecimens needed for their research; to facilitate collaboration and sharing of material and data among investigators across the globe; to accelerate research to facilitate the discovery of new treatments, therapeutics and eventually cures for rare diseases as well as common diseases; to identify, locate and increase the awareness of existing biorepositories across the globe; and to link the RD-HUB with the Global Rare Diseases Patient Registry and Data Repository (GRDR). rare disease, disease, public lists: NIDDK Central Repository
lists: National Disease Research Interchange
is listed by: NIH Data Sharing Repositories
is listed by: One Mind Biospecimen Bank Listing
is listed by: Accelerated Cure Project MS Repository
is listed by: Cooperative Human Tissue Network Western Division at Vanderbilt University Medical Center
is listed by: NIDDK Information Network (dkNET)
is related to: GRDR
has parent organization: Office of Rare Diseases Research
Rare disease, Aging NIH PMID:20609392 Public, The community can contribute to this resource nlx_143682 http://biospecimens.ordr.info.nih.gov/ SCR_004327 Biospecimens / Biorepositories: Rare Disease-HUB, Biospecimens/Biorepositories: Rare Disease-HUB, Rare Disease-HUB 2026-09-05 06:32:32 0
KI Biobank - SATSA
 
Resource Report
Resource Website
1+ mentions
KI Biobank - SATSA (RRID:SCR_005966) KI Biobank - SATSA biomaterial supply resource, material resource Longitudinal twin study to understand individual differences in aging with corresponding data and biological samples. The twin design and the inclusion of twins reared apart makes it possible to study the importance of genetic and environmental factors that may underlie differing aging outcomes. Further, the broad spectrum of biological, psychological, and social domains assessed across the life span makes it possible to study patterns of change within and across domains and how these predict health and diseases of aging. The study is comprised of several longitudinal components including, a comprehensive questionnaire that was sent to all twins in the Swedish Twin Registry who were separated at an early age and reared apart and a control sample of twins reared together. The questionnaires include items concerning rearing, family, adult, and working environment, health status, health related behaviors (e.g. alcohol, tobacco, and dietary habits) as well as relationships, and personality measures. The questionnaires were sent again at 3 year intervals in 1987, 1990, 1993 and after a break again in 2004, 2007, and 2010. Thus far more than 2,000 twins have responded to at least one of the seven questionnaire assessments conducted between 1984 and 2010. Additionally there is information about midlife life style factors from the Swedish Twin Registry that were collected about twenty years before SATSA started. In the second component a subsample of 861 individuals have participated in at least one wave of in-person testing (IPT). The first IPT started in 1986 and since then eight IPTs have been collected and the last wave will be collected during 2012-2013. The IPT includes a health examination, structured interviews, tests of functional capacity, and memory and thinking abilities. To date, over 76% of the sample has participated in 3 or more measurement waves. At IPT9 a third component was added to SATSA, a measure of day-to-day fluctuations in memory and thinking abilities, and emotions. Information about social interactions is also collected. After the visit by the research nurses the twins fill out the day-to-day booklet during the next five days. This procedure will be repeated in IPT10. This will add information about small and short-term changes and more changes are supposed to indicate the beginning of poor health. Data from SATSA can be used to study various aspects of aging. For example, the relative importance of genetic and environmental factors for individual differences in aging especially in cognitive and physical domains has been studied. A further main focus is to study changes within and across domains and which genetic and life style factors predict these changes. Given the wide spectrum of data from measured genes to social relationships collected over more than two decades they dare to say that SATSA is a unique study, with the possibility to answer many questions within gerontology and geriatrics. Types of samples * Serum * DNA Number of sample donors: 674 (June 2010) gene, environment, health, disease, longitudinal, questionnaire, life style, interview, functional capacity, memory, thinking, emotion, social interaction, cognitive, physical, behavior, relationship, personality, health uses: Swedish Twin Registry
is listed by: One Mind Biospecimen Bank Listing
is related to: KI Biobank - HARMONY
has parent organization: Karolisnka Biobank
Aging, Twin, Control, (reared apart vs. reared together) MacArthur Foundation Research Network on Successful Aging ;
NIA AG04563;
NIA AG10175;
NIA AG08724;
Swedish Research Council 825-2007-7460;
Swedish Research Council 825-2009-6141;
Swedish Research Council 825-3011-6182;
Swedish Council for Working Life and Social Research 97:0147:1B 2009-0795
nlx_151325 http://ki.se/forskning/ki-biobank, http://ki.se/ki/jsp/polopoly.jsp?d=29354&a=24035&l=en SCR_005966 Swedish Adoption / Twin Study of Aging, KI Biobank - Swedish Adoption/Twin Study of Aging, SATSA - The Swedish Adoption/Twin Study of Aging, Swedish Adoption/Twin Study of Aging 2026-09-05 06:32:36 1
KI Biobank - HARMONY
 
Resource Report
Resource Website
1+ mentions
KI Biobank - HARMONY (RRID:SCR_008884) HARMONY biomaterial supply resource, material resource A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal is listed by: One Mind Biospecimen Bank Listing
is related to: Swedish Twin Registry
is related to: KI Biobank - SATSA
has parent organization: Karolisnka Biobank
Dementia, Alzheimer''''s disease, Discordant twin, Aging NIH nlx_151298 http://ki.se/en/meb/dementia-in-swedish-twins-harmony SCR_008884 Dementia in Swedish Twins (HARMONY) 2026-09-05 06:32:41 2
Swedish Twin Registry
 
Resource Report
Resource Website
1+ mentions
Swedish Twin Registry (RRID:SCR_008883) STR patient registry, people resource The Swedish Registry was established in the 1960s to study how smoking affects our health. Then little was known about the dangers of smoking. There is, at present, information on approximately 85 000 twin pairs, both monozygotic and dizygotic. As described by Lichtenstein et al., 2002, Pedersen et al., 2002 and Lichtenstein et al., 2006, the Swedish Twin Registry (STR) is the largest and most comprehensive twin registry in the world. Founded in 1961, the registry covers all like-sexed twin births since 1886, and all twin births (like- and unlike-sexed) since 1906. There are currently 89,000 pairs of twins registered, of which both members of 65,000 pairs are alive, with regular updates concerning vital status, addresses, hospital discharges, tumors, and causes of death, through subscriptions to national registries. Furthermore, there is extensive epidemiological data (exposures, symptoms and disease through questionnaires or interviews) on all pairs born 1986 or earlier, for most individuals involving 30 year baseline to follow-up information. Furthermore, data from the cohort of twins born since 1991 have been or will be contacted with a telephone interview with the parents of twins as they turn 9 (CATSS). Because the STR is an (inter)national resource, we are receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. zygosity, age, sex, education, monozygotic, dizygotic, child, adolescent, adult, tobacco, nicotine, gene, environment is used by: KI Biobank - STAR
is used by: KI Biobank - SATSA
is related to: KI Biobank
is related to: KI Biobank - KOL
is related to: KI Biobank STAGE-ADHD
is related to: KI Biobank - EuroClot
is related to: KI Biobank - Economical Behavior
is related to: CATSS - Child and Adolescent Twin Study in Sweden
is related to: DOGSS
is related to: KI Biobank - SALTY
is related to: KI Biobank - STAGE
is related to: KI Biobank - Parkinson
is related to: KI Biobank - HARMONY
is related to: Twin Study of Child and Adolescent Development - TCHAD
is related to: KI Biobank - TwinGene
has parent organization: Karolinska Institute; Stockholm; Sweden
Twin, Smoking, Aging Collaboration: Receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. nlx_151292 http://ki.se/ki/jsp/polopoly.jsp?d=9610&l=en SCR_008883 2026-09-05 06:32:41 6
KI Biobank - EXT
 
Resource Report
Resource Website
KI Biobank - EXT (RRID:SCR_008875) KI Biobank - EXT biomaterial supply resource, material resource THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The aim of EXT (extinction) is to investigate the relation between specific genetic variations and cognitive control process in fear. Blood samples will be collected from about 300 healthy, young individuals (age 18-35). genetic variation, cognitive control, fear, healthy, early adult, gene is listed by: One Mind Biospecimen Bank Listing
has parent organization: Karolisnka Biobank
Healthy, Aging THIS RESOURCE IS NO LONGER IN SERVICE nlx_149601 SCR_008875 KI Biobank - Extinction 2026-09-05 06:32:41 0
SHEEP - Stockholm Heart Epidemiology Program
 
Resource Report
Resource Website
1+ mentions
SHEEP - Stockholm Heart Epidemiology Program (RRID:SCR_008905) KI Biobank - SHEEP biomaterial supply resource, material resource DNA from a population-based case-control study designed to investigate causes of myocardial infarction. The study population comprised all Swedish citizens living in the county of Stockholm who were 45 to 70 years of age and free of previously clinically diagnosed MI. Sample types: * DNA Number of sample donors: 2831 (sample collection completed) heart, epidemiology, cardiac disease, middle adult human, late adult human, aging is listed by: One Mind Biospecimen Bank Listing
has parent organization: Karolisnka Biobank
Myocardial infarction, Normal, Aging nlx_151444 http://ki.se/ki/jsp/polopoly.jsp?d=29346&a=31574&l=en SCR_008905 Stockholm Heart Epidemiology Program 2026-09-05 06:32:41 2
National Long Term Care Survey
 
Resource Report
Resource Website
National Long Term Care Survey (RRID:SCR_008943) NLTCS biomaterial supply resource, material resource A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood is listed by: One Mind Biospecimen Bank Listing
is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: Duke University; North Carolina; USA
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging, Functionally impaired, Late adult human, Non-disabled NIA N2 U01 AG0007198 Public, Data use agreement required. nlx_151860 http://dx.doi.org/10.3886/ICPSR09681.v5 SCR_008943 NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey 2026-09-05 06:32:41 0
Layton Center Biomarkers and Genetics
 
Resource Report
Resource Website
Layton Center Biomarkers and Genetics (RRID:SCR_008824) Layton Biomarkers and Genetics biomaterial supply resource, material resource A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history is listed by: One Mind Biospecimen Bank Listing
has parent organization: OHSU Layton Aging and Alzheimer's Disease Center
Aging, Dementia, Alzheimer's disease NIA P30 AG08017 Researchers must fill out request forms nlx_144448 SCR_008824 Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics 2026-09-05 06:32:41 0
Iowa 65+ Rural Health Study
 
Resource Report
Resource Website
1+ mentions
Iowa 65+ Rural Health Study (RRID:SCR_008937) Iowa 65+ Rural Health Study biomaterial supply resource, material resource A data set and sister study to the Established Populations for Epidemiologic Study of the Elderly (EPESE). It complements the findings of the three other EPESE sites (East Boston, MA; New Haven, CT; and north-central North Carolina) and has common items and methods in many domains. The target population was all persons 65 years and older in two rural counties in east central Iowa: Iowa and Washington counties. In 1981 a census of older persons in the target area was conducted by the investigators, creating an ascertainment list having 99% of the persons identified in the previous year by the US Decennial Census. The baseline survey was conducted between December 1991 and August 1992. Overall, 3,673 persons, or 80% of the target population were interviewed: 65-69 (N = 986), 70-74 (N = 988), 75-79 (N = 815), 80-84 (N = 523), and 85+ (N = 361). The population is virtually entirely Caucasian. Subsequently, personal follow-up surveys were conducted 3, 6, and 10 years after the baseline survey. Telephone surveys were conducted 1, 2, 4, 5, and 7 years after the baseline survey. Data collected from respondents included information about demographics, major health conditions, health care utilization, hearing and vision, weight and height, elements of nutrition, sleep problems, depressive and anxiety symptoms, alcohol and tobacco use, cognitive performance and dementia screening, incontinence measures, life satisfaction index, social networks and support, worries, medication use, activities of daily living, dental problems, satisfaction with medical care, life events, brief economic status, automobile driving habits, multiple measures of physical and disability status, and blood pressure. At follow-up #6, there were a series of physical function performance tests, the so-called NIA-MacArthur Battery, and blood was drawn for biochemical tests and potentially other determinations. In addition, some datasets were linked to the EPESE dataset under appropriate restrictions, including Iowa state driving records and clinical diagnoses and medical care utilization from the Centers for Medicare and Medicaid Services. Data Availability: The dataset has been shared with several investigative teams under special arrangement with the Principal Investigator. Early surveys are available from ICPSR. A small storage of blood is available for exploratory analyses. * Dates of Study: 1991-2001 * Study Features: Longitudinal, Anthropometric Measures, Biomarkers * Sample Size: 1991-2: 3,673 (baseline) Link: EPESE 1981-93 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09915 blood, mortality, hospitalization, chronic disease, late adult human, longitudinal, anthropometry, biomarker, survey, caucasian, demographics, health, health care, hearing, vision, weight, height, nutrition, sleep, depression, anxiety, alcohol use, tobacco use, cognition, dementia, incontinence, social, medication use, activity, dental, satisfaction, medical care, economic status, driving, physical, disability, blood pressure, interview is listed by: One Mind Biospecimen Bank Listing
is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: Established Populations for Epidemiologic Studies of the Elderly
Aging NIA Public nlx_151838 SCR_008937 Iowa 65 and over Rural Health Study, Iowa 65 Plus Rural Health Study 2026-09-05 06:32:41 3
Vietnam Era Twin Registry Biospecimen Repository
 
Resource Report
Resource Website
Vietnam Era Twin Registry Biospecimen Repository (RRID:SCR_008808) VET Registry Biospecimen Repository biomaterial supply resource, material resource The Vietnam Era Twin (VET) Registry maintains a repository of biological specimens obtained from Registry members. The VET Registry Biospecimen Repository includes DNA, plasma, and serum samples obtained from selected VET Registry members. As the VET Registry is a national resource for studies investigating genetic and non-genetic influences on health and disease in middle age men, this enhances the value of the information collected from VET Registry members to the research community. The VET Registry has developed a general system of protocols for the collection and storage of biological specimens that assures confidentiality for all participants. The biological specimens currently in use are stored at the R&D Core Laboratory at the VA Puget Sound Health Care System (VAPSHCS) in Seattle, WA. The R&D Core Laboratory performs DNA extraction procedures and separates out DNA, plasma, and serum for testing and storage. It is important to note that Core Laboratory staff has absolutely no phenotypic (non-genetic) information about VET Registry members, as the lab is completely blinded to the identity, disease characteristics, and any other research data collected from VET Registry members. The Massachusetts Veterans Epidemiology Research and Information Center (MAVERIC) Core Laboratory is located at the VA Boston Health Care System in Boston, MA, and serves as the long-term storage site for the VET Registry Biospecimen Repository. Before a VET Registry member decides whether to participate in the Biospecimen Repository, the procedures, confidentiality safeguards, and potential risks are explained in great detail. To be able to accommodate the wishes of members, a so-called layered consent process is used which allows members to choose from several options with regard to how their biological specimen will be used in current or future research studies. Such options may include: 1) not having their samples used for any testing beyond the immediate goals of the study; 2) allowing for future testing of their samples restricted to the study for which they provided the sample; or 3) allowing unrestricted future research use of their samples. Members are informed that any future use of their samples would have to be approved by the VET Registry, in addition to an independent ethics committee that protects the rights and welfare of research subjects, this board is more commonly known as an Institutional Review Board or IRB. Confidentiality safeguards include assigning code numbers, as opposed to name or other personal information, on all biological specimens. Zygosity Testing The accuracy of DNA testing makes it the best method for determining zygosity, identical (monozygotic) versus fraternal (non-identical or dizygotic), in VET Registry twin members. The use of DNA for zygosity testing is only performed when both members of a twin pair agree to the testing. Other Genetic Testing for specific genes will not necessarily involve providing the participants with test results. twin, male, adult, dna, plasma, serum, gene, genetic, health, disease, vietnam veteran is listed by: One Mind Biospecimen Bank Listing
has parent organization: Vietnam Era Twin Registry
Vietnam Era Twin Registry member (Vietnam War and Twin), Aging Collaborators (members of the cohort)?: As the VET Registry is a national resource for studies investigating genetic and non-genetic influences on health and disease in middle age men, This enhances the value of the information collected from VET Registry members to the research community. nlx_144390 SCR_008808 2026-09-05 06:32:41 0
Framingham Heart Study
 
Resource Report
Resource Website
100+ mentions
Framingham Heart Study (RRID:SCR_008963) FHS biomaterial supply resource, material resource A longitudinal, epidemiologic study to identify the common risk factors or characteristics that contribute to cardiovascular disease by following its development over a long period of time in a large group of participants who had not yet developed overt symptoms or suffered a heart attack or stroke. Since that time the FHS has studied three generations of participants resulting in biological specimens and data from nearly 15,000 participants. Since 1994, two groups from minority populations, including related individuals have been added to the FHS. FHS welcomes proposals from outside investigators for data and biospecimens. The researchers recruited 5,209 men and women between the ages of 30 and 62 from the town of Framingham, Massachusetts, and began the first round of extensive physical examinations and lifestyle interviews that they would later analyze for common patterns related to CVD development. Since 1948, the subjects have continued to return to the study every two years for a detailed medical history, physical examination, and laboratory tests, and in 1971, the Study enrolled a second generation - 5,124 of the original participants'''' adult children and their spouses - to participate in similar examinations. In 1994, the need to establish a new study reflecting a more diverse community of Framingham was recognized, and the first Omni cohort of the Framingham Heart Study was enrolled. In April 2002 the Study entered a new phase, the enrollment of a third generation of participants, the grandchildren of the Original Cohort. In 2003, a second group of Omni participants was enrolled. Over the years, careful monitoring of the Framingham Study population has led to the identification of major CVD risk factors, as well as valuable information on the effects of these factors such as blood pressure, blood triglyceride and cholesterol levels, age, gender, and psychosocial issues. Risk factors for other physiological conditions such as dementia have been and continue to be investigated. In addition, the relationships between physical traits and genetic patterns are being studied. FHS clinical and research data is stored in the dbGaP and NHLBI Repository repositories and may be accessed by application. Please check the following repositories before applying for data through FHS. Investigators seeking data that is not available through dbGaP or BioLINCC or seeking biological specimens may submit a proposal through the FHS web-based research application. The FHS data repository may be accessed through this FHS website, under the For Researchers link, then Description of Data, in order to determine if and how the desired data is stored. Proposals may involve the use of existing data, the collection of new data, either directly from participants or from previously collected samples, images, or other materials (e.g., medical records). The FHS Repository also has biological specimens available for genetic and non-genetic research proposals. Specimens include urine, blood and blood products, as well as DNA. clinical study, longitudinal study, heart, cardiac, adult human, male, female, risk factor, blood pressure, blood triglyceride, cholesterol level, age, gender, psychosocial, dementia, physical trait, genetic trait, minority, clinical, genotype, phenotype, urine, blood, blood product, dna, FASEB list is listed by: One Mind Biospecimen Bank Listing
is related to: NCBI database of Genotypes and Phenotypes (dbGap)
is related to: Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC)
has parent organization: Boston University; Massachusetts; USA
Cardiovascular disease, Normal, Aging NHLBI Division of Prevention and Population Sciences Public / Collaboration preferred: FHS welcomes proposals from outside investigators. Collaboration with FHS investigators is encouraged as it helps to maximize the scientific potential of the unique data. nlx_151991 SCR_008963 2026-09-05 06:32:41 164
National Social Life Health and Aging Project (NSHAP)
 
Resource Report
Resource Website
1+ mentions
National Social Life Health and Aging Project (NSHAP) (RRID:SCR_008950) NSHAP biomaterial supply resource, material resource A longitudinal, population-based study of health and social factors, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health and illness, medication use, cognitive function, emotional health, sensory function, health behaviors, social connectedness, sexuality, and relationship quality. NSHAP provides policy makers, health providers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The study contributes to finding new ways to improve health as people age. In 2005 and 2006, NORC and Principal Investigators at the University of Chicago conducted the first wave of NSHAP, completing more than 3,000 interviews with a nationally representative sample of adults aged 57 to 85. In 2010 and 2011, nearly 3,400 interviews were completed for Wave 2 with these Wave 1 Respondents, Wave 1 Non-Interviewed Respondents, and their spouses or cohabiting romantic partners. The second wave of NSHAP is essential to understanding how social and biological characteristics change. NSHAP, by eliciting a variety of information from respondents over time, provides data that will allow researchers in a number of fields to examine how specific factors may or may not affect each other across the life course. For both waves, data collection included three measurements: in-home interviews, biomeasures, and leave-behind respondent-administered questionnaires. The face-to-face interviews and biomeasure collection took place in respondents'''' homes. NSHAP uses a national area probability sample of community residing adults born between 1920 and 1947 (aged 57 to 85 at the time of the Wave 1 interview), which includes an oversampling of African-Americans and Hispanics. The NSHAP sample is built on the foundation of the national household screening carried out by the Health and Retirement Study (HRS) in 2004. Through a collaborative agreement, HRS identified households for the NSHAP eligible population. A sample of 4,400 people was selected from the screened households. NSHAP made one selection per household. Ninety-two percent of the persons selected for the NSHAP interview were eligible. For Wave 2 in 2010 and 2011, NSHAP returned to Wave 1 Respondents and eligible non-interviewed respondents from Wave 1 (Wave 1 Non-Interviewed Respondents). NSHAP also extended the Wave 2 sample to include the cohabiting spouses and romantic partners of Wave 1 Respondents and Wave 1 Non-Interviewed Respondents. Partners were considered to be eligible to participate in NSHAP if they resided in the household with the Wave 1 Respondent/Wave 1 Non-Interviewed Respondent at the time of the Wave 2 interview and were at least 18 years of age. Wave I biomeasures: height; weight; waist circumference; blood pressure; smell; taste; vision; touch; respondent-administered vaginal swabs; oral mucosal transudate (OMT) for HIV-1 antibody screening; saliva; ����??get up and go����??; and blood spots. Technological advances in biomeasure collection methods have decreased respondent burden and increased ease of collection, storage, and yield of various biomeasures for the second wave of NSHAP. Wave II biomeasures: anthropometrics, including height, hip and waist circumference, and weight; cardiovascular function, including blood pressure, heart rate variability, and pulse; 2 of the 3 components of the short physical performance battery (SPPB) including chair stands and a timed walk; sensory function including smell; and actigraphy. In addition, we collect dried blood spots, microtainer blood, passive drool and salivettes, urine, and respondent-administered vaginal swabs, each of which are analyzed using multiple assays for a variety of measures and rationales. Furthermore, we assess respondents����?? cognition using the Montreal Cognitive Assessment (MoCA). Data Availability: NSHAP data made available to the public does not contain any identifiable respondent information and uses code numbers instead of names for all data. De-identified data from the 2005 and 2006 interviews are available to researchers through the National Archive of Computerized Data on Aging, located within Inter-University Consortium for Political and Social Research (ICPSR). Data from the Wave 2 interviews in 2010 and 2011 will be available in the summer of 2012. * Dates of Study: 2005-2006, 2010-2011 * Study Features: Biospecimens, Anthropometric Measures * Sample Size: ** Wave 1: 3,005 ** Wave 2: 3,377 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/20541 social life, health, man, woman, late adult human, middle adult human, longitudinal, social support, personal relationship, social, physical health, illness, cognitive function, emotional health, sensory function, social connectedness, sexuality, relationship quality, intimate relationship, biospecimen, anthropometric measure, interview, biomeasure, questionnaire, african-american, hispanic, minority, marriage, anxiety, attitude, body height, body weight, doctor visit, drug, ethnicity, family size, health attitude, health problem, health services utilization, health status, intimate partner, life satisfaction, medical evaluation, medical procedure, medication, menopause, mental health, morbidity, nutrition, quality of life, sexual activity, cohabitation, social network, demographic, prevention, cognition, well-being, survey, sleep, actigraphy, healthy aging, vaginal swab, blood spot, saliva, blood, urine is listed by: One Mind Biospecimen Bank Listing
is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: Biomarker Network
has parent organization: University of Chicago; Illinois; USA
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging Office of Research on Women's Health ;
Office of AIDS Research ;
National Opinion Research Center ;
NIA R01-AG021487;
NIA R37-AG030481;
NIA R01-AG033903
PMID:19837963 Public: Users must request and complete the NSHAP Restricted Data Use Agreement form. nlx_151867 http://gero.usc.edu/CBPH/network/resources/studies/nshap.shtml SCR_008950 National Social Life Health and Aging Project 2026-09-05 06:32:41 6
Geriatric Depression Scale
 
Resource Report
Resource Website
1000+ mentions
Geriatric Depression Scale (RRID:SCR_008739) GDS assessment test provider, material resource A basic screening measure for depression in older adults. They have a FREE iPhone APP and a FREE ANDROID APP that allows you to do the 15-item GDS on your phone and automatically calculate the results. They provide no interpretation of results, but patients with scores higher than 5 should be interviewed carefully. These apps are also available through the Android Marketplace or iTunes stores on your phones. Note: This page is under continuous development but they will try to keep translations of the scale available. Anyone with their own translation can submit it and they''ll post it. late adult human, depressive disorder has parent organization: Stanford/VA Aging Clinical Research Center Aging PMID:7183759
PMID:1863703
The community can contribute to this resource nlx_143945 SCR_008739 2026-09-05 06:32:40 1235

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