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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | ||||||||||||||
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OMIM Resource Report Resource Website 5000+ mentions |
OMIM (RRID:SCR_006437) | OMIM, MIM | catalog, data or information resource, database | Online catalog of human genes and genetic disorders, for clinical features, phenotypes and genes. Collection of human genes and genetic phenotypes, focusing on relationship between phenotype and genotype. Referenced overviews in OMIM contain information on all known mendelian disorders and variety of related genes. It is updated daily, and entries contain copious links to other genetics resources. | gene, genetics, phenotype, genotype, genetic loci, mutation, clinical, trait, disorder, umls, ontology, gold standard, FASEB list |
is used by: Human Phenotype Ontology is used by: NIF Data Federation is used by: MitoMiner is used by: Schizo-Pi is used by: GEMINI is used by: MARRVEL is used by: HmtPhenome is listed by: BioPortal is listed by: OMICtools is related to: HomoloGene is related to: TopoSNP is related to: phenomeNET is related to: Integrated Gene-Disease Interaction is related to: OMIA - Online Mendelian Inheritance in Animals is related to: Europhenome Mouse Phenotyping Resource is related to: Homophila is related to: Biomine is related to: MalaCards is related to: PhenoTips is related to: KOBAS is related to: Integrated Manually Extracted Annotation is related to: aGEM is related to: biomaRt has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA has parent organization: NCBI works with: Human Mouse Disease Connection works with: Database of genes related to Repeat Expansion Diseases |
Genetic disorder, Mendelian disorder, Developmental disorder | PMID:22477700 PMID:22470145 PMID:21472891 PMID:19728286 PMID:18842627 PMID:18428346 PMID:17642958 PMID:17357067 PMID:15608251 PMID:15360913 PMID:11752252 PMID:10845565 PMID:10612823 PMID:9805561 PMID:7937048 PMID:1867277 |
Restricted | nif-0000-03216, r3d100010416, OMICS_00278 | http://www.ncbi.nlm.nih.gov/sites/entrez?db=omim, http://www.ncbi.nlm.nih.gov/Omim/, http://purl.bioontology.org/ontology/OMIM, https://doi.org/10.17616/R3188W | SCR_006437 | SciCrunch Registry | Online Mendelian Inheritance in Man, OMIM - Online Mendelian Inheritance in Man, MIM, The Online Mendelian Inheritance in Man Morbid Map | 2026-10-10 12:38:03 | 7365 | ||||
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Plant Organelles World Resource Report Resource Website |
Plant Organelles World (RRID:SCR_006313) | Plant Organelles World | data or information resource, image collection, video resource | Images and movies of plant organelle dynamics that were obtained from plant research, based on the Plant Organelles Database. This educational tool is written in layman''''s terms to engage members of the non-scientific community such as students and school teachers. Additional content: ''''What happens, if organelle functions become defective '''' was added in anticipation that readers will be interested in this subject. The Scientific Research of Priority Areas on Organelle Differentiation as the Strategy for Environmental Adaptation in Plants was started on 2004 to promote a comprehensive understanding of plant organelle research, and research with plant scientists all over Japan has been conducted for the past five years. The Plant Organelles Database (PODB), which contains images and movies of various plant organelles that were obtained from this project''''s research was constructed but was designed for scientists. ''''The Plant Organelles World'''' was created for the non-scientific community to understand. Plants have developed mechanisms to adapt to the environment, which is different from the mammalian system of adaption. From recent plant research, the small compartments in cells, ''''organelles'''', have been shown to be involved in various responses to environmental changes. The dramatic development of bio-imaging analysis tools such as green fluorescent protein (GFP), which won a Nobel prize for chemistry in 2008, has contributed to recent plant science, because it has become easier to biotechnologically introduce GFP and its derivatives into cells, leading to convenient methods of observing the inside of cells. As a result, we can analyze organelle dynamics and obtain insights related to understanding the way plants live, as well as forming a deeper understanding of organelles. | organelle, electron microscopy, environment |
is related to: Plant Organelles Database has parent organization: National Institute for Basic Biology; Okazaki; Japan |
PMID:21115470 | nlx_151997 | SCR_006313 | SciCrunch Registry | 2026-10-10 12:37:22 | 0 | ||||||||
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ProtEra Resource Report Resource Website 10+ mentions |
ProtEra (RRID:SCR_006434) | commercial organization | An Antibody supplier | nlx_152440 | SCR_006434 | SciCrunch Registry | 2026-10-10 12:37:25 | 10 | ||||||||||||
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BC Cancer Foundation Resource Report Resource Website 1+ mentions |
BC Cancer Foundation (RRID:SCR_006428) | BC Cancer Foundation | institution | The fundraising partner of the BC Cancer Agency and the largest charitable funder of cancer research in this province. We enable donors to make contributions to leading-edge research that has a direct impact on improvements to cancer care for patients in British Columbia. By connecting philanthropy and research, we support the revolutionary advances that will help us achieve our vision of a world free from cancer. Our Cause: Supporting world-renowned cancer research in BC One in three British Columbians will be diagnosed with cancer in their lifetime. Because the BC Cancer Agency integrates research and treatment, the process from discovery to treatment is shorter, and researchers are asking questions focused on the needs of patients in BC. The BC Cancer Agency excels at translating exciting discoveries from the researcher''''s bench to the patient''''s bedside. This is the quickest and most effective way to impact cancer care, and it makes the Agency an international leader in cancer research. Our Donors: Leading the way in helping us advance our cause Our unique relationship with the BC Cancer Agency allows our donors to be part of research discoveries made right here in BC. We invite donors to become more connected to the BC Cancer Agency''''s world-leading research that is shaping the future of patient care. At the BC Cancer Foundation we are funding the areas of greatest priority and promise. We know, because we ask the scientists and clinicians at the BC Cancer Agency to identify the priorities and needs that will have the most significant and timely impact on cancer care and treatment. We then partner with our donors to raise the necessary funds in support of this life-saving work. Together we are funding and finding solutions that are having a direct impact on improving care for cancer patients in British Columbia. | british columbia, research | is related to: BC Cancer Agency | Cancer | nlx_151770, ISNI 0000 0001 0745 6244, grid.484001.9 | https://ror.org/03gqhbs95 | SCR_006428 | SciCrunch Registry | 2026-10-10 12:37:31 | 4 | |||||||
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Congress of Neurological Surgeons University of Neurosurgery Resource Report Resource Website |
Congress of Neurological Surgeons University of Neurosurgery (RRID:SCR_006309) | University of Neurosurgery | continuing medical education, data or information resource, portal, short course, topical portal, training resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on August 19,2021.Designed with the neurosurgeon in mind, this portal contains everything you need to acquire new skills and techniques, including courses, an image database, and the world''s largest neurosurgical wiki reference - NeuroWiki. The new University of Neurosurgery includes: * More than 40 new online courses - in all neurosurgical subspecialties. * Archived webinars. * Lectures from the CNS Annual Meetings. * Neurosurgical image database. We are continuing to add new content - check back often. | surgery, neurology, neurosurgery, anatomy, cerebrovascular, epilepsy, core competency, clinical, non-clinical, pain, tumor, trauma, spine, socio-economic, peripheral nerve, pediatric, webinar |
has parent organization: Congress of Neurological Surgeons is parent organization of: Congress of Neurological Surgeons Online Image Database |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-06717 | SCR_006309 | SciCrunch Registry | CNS University, CNS University of Neurosurgery | 2026-10-10 12:37:36 | 0 | |||||||
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Proteome Resources Resource Report Resource Website |
Proteome Resources (RRID:SCR_006468) | commercial organization | THIS RESOURCE IS NO LONGER IN SERVCE, documented on August, 19, 2021. Antibody supplier. | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152439 | SCR_006468 | SciCrunch Registry | 2026-10-10 12:38:03 | 0 | |||||||||||
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Indiana University School of Medicine Department of Pharmacology and Toxicology Resource Report Resource Website |
Indiana University School of Medicine Department of Pharmacology and Toxicology (RRID:SCR_006501) | IU Pharmacology and Toxicology, IU Pharmacology Toxicology, Indiana University, Department of Pharmacology and Toxicology | data or information resource, department portal, organization portal, portal | Mission of Department of Pharmacology and Toxicology is to perform research to advance understanding of interactions of chemicals and drugs with living systems and to assist in development of new therapeutics and strategies to treat disease. | has parent organization: Indiana University School of Medicine; Indiana; USA | nif-0000-01966 | http://pharmtox.iusm.iu.edu | SCR_006501 | SciCrunch Registry | Indiana University School of Medicine; Department of Pharmacology Toxicology, Indiana University School of Medicine; Department of Pharmacology and Toxicology, IU Department of Pharmacology Toxicology, IUSM Dept. of Pharmacology and Toxicology, IUSM Department of Pharmacology Toxicology, IU Department of Pharmacology and Toxicology, IUSM Department of Pharmacology and Toxicology | 2026-10-10 12:37:38 | 0 | ||||||||
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Louisiana State University School of Medicine Health Sciences Center Department of Pharmacology and Experimental Therapeutics Resource Report Resource Website |
Louisiana State University School of Medicine Health Sciences Center Department of Pharmacology and Experimental Therapeutics (RRID:SCR_006504) | data or information resource, department portal, organization portal, portal | Department of Pharmacology and Experimental Therapeutics faculty provide professional instruction in schools of Medicine, Dentistry, Nursing, Allied Health and Graduate Studies. Department offers Ph.D. and M.D./Ph.D. degrees and graduate and post doctoral training. | has parent organization: Louisiana State University School of Medicine; Louisiana; USA | nif-0000-06734 | SCR_006504 | SciCrunch Registry | LSUHSC School of Medicine at New Orleans; Department of Pharmacology and Experimental Therapeutics, LSUHSC School of Medicine Department of Pharmacology and Experimental Therapeutics, LSUHSC Department of Pharmacology and Experimental Therapeutics | 2026-10-10 12:38:03 | 0 | ||||||||||
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LeadDiscovery: Providing Information to the Drug Discovery Sector Resource Report Resource Website |
LeadDiscovery: Providing Information to the Drug Discovery Sector (RRID:SCR_006464) | data or information resource, portal, topical portal | LeadDiscovery was founded by life scientists to expedite drug discovery and pharmaceutical development. Based on a solid background of experience from within the pharmaceutical research and development sector, the aim of this resource is to help companies optimize drug discovery and product pipelines through the identification of breaking research and the in depth and expert evaluation of selected therapeutic areas. At the same time it also provides a showcase for pharmaceutical, biotechnology and academic organizations wishing to increase the exposure of their research to the drug development community. LeadDiscovery sits at the center of this sector helping companies to identify commercially viable R&D options from within small biotechs and the public sector. Additionally, it supports the drug discovery and pharmaceutical development community through three key services: DailyUpdates, UpdatesPlus and PharmaReports - DailyUpdates: Launched in 2002 this popular e-mail alert service delivers information on breaking research, new clinical trials, drug development news and recently published market research and pipeline analysis reports. Registration to receive the service is available here - UpdatesPlus: Developed in 2007 as an extension of DailyUpdates, UpdatesPlus provides a monthly in depth analysis of breaking research and development activity in high profile therapeutic areas. - PharmaReports: LeadDiscovery offers a wide range of in depth pharmaceutical reports. It''s reports include market research reports and pipeline analyses. You can search our entire portfolio using LeadDiscovery''s search engine. Alternatively as it are one of the few information providers that has extensive research and development experience, LeadDiscovery occupys a unique position of being able to source reports that accurately meet your needs. If we don''t have a report that fits your requirements, it can produce one through its pharmaceutical consultancy services. LeadDiscovery offers full reports in selected areas of the pharmaceutical and biotech sector. Each of the reports below has been especially selected by LeadDiscovery and categorized into relevant areas: - Oncology - Cancer Immunotherapy - Immunology & Inflammatory Diseases - Infectious Diseases - Psychiatric, Addictive & Sleep Disorders - Pain - Neurodegenerative & Neuroelectrophysiological Disorders - Metabolic & Hormonal Disorders - Cardiovascular Disorders - GenitoUrinary Tract Disorders - Technology - Diagnostics & Devices - Other Theraputic Areas, Pharmaceutical Strategy and Development | drug, e-mail, genitourinary tract disorder, addictive, analysis, biotech, biotechnology, cancer, cardiovascular, clinical trail, development, device, diagnostic, disease, hormonal, immunology, immunotherapy, infectious, inflammatory, life scientist, metabolic, neurodegenerative, neuroelectrophysiological, oncology, pain, pharmaceutical, psychiatric, research, sleep, strategy, technology, therapeutic | nif-0000-10279 | SCR_006464 | SciCrunch Registry | LeadDiscovery | 2026-10-10 12:37:25 | 0 | ||||||||||
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University of British Columbia Department of Pharmacology Resource Report Resource Website |
University of British Columbia Department of Pharmacology (RRID:SCR_006466) | UBC Department of Anesthesiology Pharmacology and Therapeutics | data or information resource, department portal, organization portal, portal | University of British Columbia Department of Anesthesiology, Pharmacology and Therapeutics is an amalgamation of three very important areas of medicine: anesthesiology, pharmacology, and therapeutics. Although we are a joined department with many common interests, each of the sections named above, bring special areas of expertise and learning to the mix. We welcome your interest in our department and look forward to the recruitment of outstanding anesthesiology residents, pharmacology grad students, anesthesiology fellows, and pharmacology post-graduate students. Information on the residency program and postgraduate programs can be found on the appropriate link. Our department now extends across the Province of British Columbia. | has parent organization: University of British Columbia; British Columbia; Canada | nif-0000-02136 | SCR_006466 | SciCrunch Registry | UBC Department of Anesthesiology Pharmacology Therapeutics, University of British Columbia Department of Anesthesiology Pharmacology and Therapeutics | 2026-10-10 12:37:38 | 0 | |||||||||
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ESPript 2.2 Resource Report Resource Website 100+ mentions |
ESPript 2.2 (RRID:SCR_006587) | ESPript | analysis service resource, data analysis service, data processing software, production service resource, service resource, software application, software resource | A utility, whose output is a PostScript file of aligned sequences with graphical enhancements. Its main input is an ascii file of pre-aligned sequences. Optional files allow further rendering. The program calculates a similarity score for each residue of the aligned sequences. The output shows: * Secondary Structures * Aligned sequences * Similarities * Accessibility * Hydropathy * User-supplied markers * Intermolecular contacts In addition, similarity score can be written in the bfactor column of a pdb file, to enable direct display of highly conserved areas. You can run ESPript from this server with the HTML interface. It is configured for a maximum of 1,000 sequences. Links to webESPript * ENDscript: you can upload a PDB file or enter a PDB code such as 1M85. The programs DSSP and CNS are executed via the interface, so as to obtain an ESPript figure with a lot of structural information (secondary structure elements, intermolecular contacts). You can also find homologous sequences with a BLAST search, perform multiple sequence alignments with MULTALIN or CLUSTALW and create an image with BOBSCRIPT or MOLSCRIPT to show similarities on your 3D structure. * ProDom: you can enter a sequence identifier to find homologous domains, perform multiple sequence alignments with MULTALIN and click on the link to ESPript. * Predict Protein: you can receive a mail in text (do not use the HTML option when you submit your request in Predict Protein) with aligned sequences and numerous information including secondary structure prediction. Click on a special html link to upload your mail in ESPript. * NPS(at): you can execute the programs BLAST and CLUSTALW to obtain multiple alignments. You can predict secondary structure elements and click on the link to ESPript. This program started in the laboratory of Dr Richard Wade at the Institut de Biologie Structurale, Grenoble. It moved later to the Laboratory of Molecular Biophysics in Oxford, then to the Institut de Pharmacologie et de Biologie Structurale in Toulouse. It is now developed in the Laboratoire de BioCristallographie of Dr Richard Haser, Institut de Biologie et de Chimie des Prot��������ines, Lyon and in the Laboratoire de Biologie Mol��������culaire et de Relations Plantes-Organismes, group of Dr Daniel Kahn, Institut National de la Recherche Agronomique de Toulouse. | postscript, aligned sequence, sequencing, blast, protein | has parent organization: Institute of Biology and Chemistry of Proteins; Lyon; France | PMID:10320398 PMID:12824317 |
Free for academic use, Fee for commercial users, Licenses for accompanying programs used in ENDscript must be requested separately. | nif-0000-30499 | http://genopole.toulouse.inra.fr/ESPript | SCR_006587 | SciCrunch Registry | Easy Sequencing in Postscript | 2026-10-10 12:37:39 | 395 | |||||
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Bone Dysplasia Ontology Resource Report Resource Website |
Bone Dysplasia Ontology (RRID:SCR_006588) | BDO | controlled vocabulary, data or information resource, ontology | Ontology that provides a comprehensive and formal representation of the different domain concepts involved in documenting the full complexity of the skeletal dysplasia domain. It captures and combines the genetic features that discriminate the bone dysplasias with the multitude of phenotypic characteristics manifested by patients and required to be taken into account in order to support the diagnosis process. | owl | is listed by: BioPortal | Bone Dysplasia | nlx_157340 | SCR_006588 | SciCrunch Registry | 2026-10-10 12:38:04 | 0 | ||||||||
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Public Health Genomics Resource Report Resource Website 500+ mentions |
Public Health Genomics (RRID:SCR_006462) | data or information resource, narrative resource, organization portal, podcast, portal, radio, training resource | The Office of Public Health Genomics (OPHG) aims to integrate genomics into public health research, policy, and programs. Doing so could improve interventions designed to prevent and control the country''s leading chronic, infectious, environmental, and occupational diseases. OPHG''s efforts focus on conducting population-based genomic research, assessing the role of family health history in disease risk and prevention, supporting a systematic process for evaluating genetic tests, translating genomics into public health research and programs, and strengthening capacity for public health genomics in disease prevention programs. Goals: To improve public health interventions of diseases of major public health importance, including chronic, infectious, environmental, and occupational diseases, through six major initiatives: * Evaluation of Genomic Applications in Practice and Prevention (EGAPP), * Human Genome Epidemiology Network (HuGENet), * NHANES Collaborative Genomics Project, * Family History Public Health Initiative, * Genomics Translation Research and Programs, and, * Genomic Applications in Practice and Prevention Network (GAPPNet). | environmental, genetics, chronic, disease, genomic, health, infectious, occupational, prevention, research | has parent organization: Centers for Disease Control and Prevention | nif-0000-10186 | SCR_006462 | SciCrunch Registry | Genomics | 2026-10-10 12:38:03 | 885 | |||||||||
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ProSpec Resource Report Resource Website 1000+ mentions |
ProSpec (RRID:SCR_006584) | commercial organization | An Antibody supplier | nlx_152436 | SCR_006584 | SciCrunch Registry | 2026-10-10 12:37:34 | 1252 | ||||||||||||
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Bloomington Drosophila Stock Center Resource Report Resource Website 1000+ mentions |
Bloomington Drosophila Stock Center (RRID:SCR_006457) | BDSC | biomaterial supply resource, material resource, organism supplier | Collects, maintains and distributes Drosophila melanogaster strains for research. Emphasis is placed on genetic tools that are useful to a broad range of investigations. These include basic stocks of flies used in genetic analysis such as marker, balancer, mapping, and transposon-tagging strains; mutant alleles of identified genes, including a large set of transposable element insertion alleles; defined sets of deficiencies and a variety of other chromosomal aberrations; engineered lines for somatic and germline clonal analysis; GAL4 and UAS lines for targeted gene expression; enhancer trap and lacZ-reporter strains with defined expression patterns for marking tissues; and a collection of transposon-induced lethal mutations. | RIN, Resource Information Network, disease model, deficiency, deletion, transposon insertion, sequenced strain, duplication, protein trap, human disease model, transposon, fly, gene, genetic, genetic analysis, database, deficiency, germline, insertion, invertebrate, scientist, somatic, stock, transposon, mutation, genetic construct, FASEB list, RRID Community Authority |
is used by: Integrated Animals is listed by: One Mind Biospecimen Bank Listing is listed by: Resource Information Network is related to: One Mind Biospecimen Bank Listing is related to: NIF Data Federation has parent organization: Indiana University; Indiana; USA |
Human disease model | NIH Office of the Director P40 OD018537 | nif-0000-00241 | https://orip.nih.gov/comparative-medicine/programs/invertebrate-models | http://flystocks.bio.indiana.edu/bloomhome.htm | SCR_006457 | SciCrunch Registry | Bloomington Drosophila Stock Center at Indiana University | 2026-10-10 12:37:31 | 3419 | ||||
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Anxiety Disorders Association of America Resource Report Resource Website 1+ mentions |
Anxiety Disorders Association of America (RRID:SCR_006578) | ADAA | data or information resource, disease-related portal, funding resource, patient-support portal, portal, topical portal | The Anxiety Disorders Association of America (ADAA) is a national nonprofit organization dedicated to the prevention, treatment, and cure of anxiety disorders and to improving the lives of all people who suffer from them. It is the leader in education, training, and research for anxiety and stress-related disorders. ADAA leads the way, improving the lives of millions of people: * Promotes professional and public awareness of anxiety and related disorders and their impact on people''s lives. * Encourages the advancement of scientific knowledge about causes and treatment of anxiety and related disorders. * Links people who need treatment with the health care professionals who provide it. * Helps people find appropriate treatment and develop self-help skills. * Works to reduce the stigma surrounding anxiety and related disorders. ADAA was founded in 1980 as the Phobia Society of America by a diverse group of clinicians and patients. The term anxiety disorder had not yet been coined. Most anxiety disorders were simply called phobias. That changed as researchers discovered links between panic attacks and abnormal blood flow in the brain, learned that anxiety disorders are associated with pervasive social and health consequences, and discovered and tested various therapies and medications to treat anxiety disorders. ADAA adopted its new name in 1990 to reflect the changing and growing field. Over the years ADAA has launched several national educational campaigns to promote awareness about anxiety disorders and encourage people to seek treatment. ADAA has also funded more than $1.5 million in anxiety disorder research. Today ADAA continues to be the voice for those affected by anxiety and anxiety-related disorders. The organization is frequently cited by the media and also provides information and treatment referrals to tens of thousands each year by phone, e-mail, and through this website. | anxiety, anxiety disorder, phobia, human, phobic disorder, one mind ptsd | nlx_143825 | SCR_006578 | SciCrunch Registry | Phobia Society of America | 2026-10-10 12:37:39 | 3 | |||||||||
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Jalview Resource Report Resource Website 1000+ mentions |
Jalview (RRID:SCR_006459) | Jalview | software resource | A free program for multiple sequence alignment editing, visualisation and analysis that is available in two forms: a lightweight Java applet for use in web applications, and a powerful desktop application that employs web services for sequence alignment, secondary structure prediction and the retrieval of alignments, sequences, annotation and structures from public databases and any DAS 1.53 compliant sequence or annotation server. Use it to view and edit sequence alignments, analyse them with phylogenetic trees and principal components analysis (PCA) plots and explore molecular structures and annotation. Jalview has built in DNA, RNA and protein sequence and structure visualisation and analysis capabilities. It uses Jmol to view 3D structures, and VARNA to display RNA secondary structure. | edit, analysis, annotation, multiple sequence alignment, wysiwyg, bio.tools, FASEB list |
is listed by: OMICtools is listed by: Debian is listed by: bio.tools is listed by: SoftCite has parent organization: University of Dundee; Scotland; United Kingdom |
BBSRC BBSB16542 | PMID:19151095 DOI:10.1093/bioinformatics/btp033 |
GNU General Public License, v3, Acknowledgement requested | OMICS_00885, biotools:Jalview | https://bio.tools/Jalview, https://sources.debian.org/src/jalview/ | SCR_006459 | SciCrunch Registry | 2026-10-10 12:37:25 | 4136 | |||||
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Science Podcast Resource Report Resource Website |
Science Podcast (RRID:SCR_006453) | Science Podcast | data or information resource, narrative resource, podcast | The Science Podcast takes you on a tour of some interesting stories in the journal and online. * MP3 of this show * Transcript of this show * Subscribe to the Science Podcast RSS Feed |
is used by: NIF Data Federation is related to: Integrated Podcasts |
nlx_36122 | SCR_006453 | SciCrunch Registry | Science Podcasts | 2026-10-10 12:37:25 | 0 | |||||||||
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Yeungnam University; North Gyeongsang; South Korea Resource Report Resource Website 1+ mentions |
Yeungnam University; North Gyeongsang; South Korea (RRID:SCR_006575) | university | Private research university located in Gyeongsan, North Gyeongsang, South Korea. University includes colleges of Law and Medicine and teaching hospital. | is parent organization of: Death Domain database | nlx_149484 | http://www.yu.ac.kr/_under/index.html | SCR_006575 | SciCrunch Registry | Yeungnam University | 2026-10-10 12:38:04 | 1 | |||||||||
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NINDS Common Data Elements Resource Report Resource Website 10+ mentions |
NINDS Common Data Elements (RRID:SCR_006577) | NINDS CDEs | data or information resource, database, narrative resource, standard specification | The purpose of the NINDS Common Data Elements (CDEs) Project is to standardize the collection of investigational data in order to facilitate comparison of results across studies and more effectively aggregate information into significant metadata results. The goal of the National Institute of Neurological Disorders and Stroke (NINDS) CDE Project specifically is to develop data standards for clinical research within the neurological community. Central to this Project is the creation of common definitions and data sets so that information (data) is consistently captured and recorded across studies. To harmonize data collected from clinical studies, the NINDS Office of Clinical Research is spearheading the effort to develop CDEs in neuroscience. This Web site outlines these data standards and provides accompanying tools to help investigators and research teams collect and record standardized clinical data. The Institute still encourages creativity and uniqueness by allowing investigators to independently identify and add their own critical variables. The CDEs have been identified through review of the documentation of numerous studies funded by NINDS, review of the literature and regulatory requirements, and review of other Institute''s common data efforts. Other data standards such as those of the Clinical Data Interchange Standards Consortium (CDISC), the Clinical Data Acquisition Standards Harmonization (CDASH) Initiative, ClinicalTrials.gov, the NINDS Genetics Repository, and the NIH Roadmap efforts have also been followed to ensure that the NINDS CDEs are comprehensive and as compatible as possible with those standards. CDEs now available: * General (CDEs that cross diseases) Updated Feb. 2011! * Congenital Muscular Dystrophy * Epilepsy (Updated Sept 2011) * Friedreich''s Ataxia * Parkinson''s Disease * Spinal Cord Injury * Stroke * Traumatic Brain Injury CDEs in development: * Amyotrophic Lateral Sclerosis (Public review Sept 15 through Nov 15) * Frontotemporal Dementia * Headache * Huntington''s Disease * Multiple Sclerosis * Neuromuscular Diseases ** Adult and pediatric working groups are being finalized and these groups will focus on: Duchenne Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy, Myasthenia Gravis, Myotonic Dystrophy, and Spinal Muscular Atrophy The following tools are available through this portal: * CDE Catalog - includes the universe of all CDEs. Users are able to search the full universe to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, all pediatric epilepsy CDEs, etc.) and download details about those CDEs. * CRF Library - (a.k.a., Library of Case Report Form Modules and Guidelines) contains all the CRF Modules that have been created through the NINDS CDE Project as well as various guideline documents. Users are able to search the library to find CRF Modules and Guidelines of interest. * Form Builder - enables users to start the process of assembling a CRF or form by allowing them to choose the CDEs they would like to include on the form. This tool is intended to assist data managers and database developers to create data dictionaries for their study forms. | common data element, neuroscience, clinical, human, adult, pediatric, disease, disorder, data standard | has parent organization: National Institute of Neurological Disorders and Stroke | NINDS contract N01-NS-7-2372 | PMID:20583225 | nif-0000-10000 | SCR_006577 | SciCrunch Registry | National Institute of Neurological Disorders and Stroke CDEs, NINDS NINDS Common Data Elements: Harmonizing information. Streamlining research. | 2026-10-10 12:37:28 | 32 |
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