Tools   Select Another Resource Report Type

http://www.barthsyndrome.org/english/view.asp?x=1

The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome - a sometimes fatal, oftentimes debilitating genetic disease. Our work includes: * Raising awareness among physicians, scientists, and the general public; * Supporting relevant research through an international grant research program; * Providing a caring and educational community for affected families; and * Hosting a unique information resource. Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner. We are the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment and pursuit of a cure for Barth syndrome (BTHS). We started in 2000, after the first international conference held in Baltimore, MD (USA) where families from around the world met to discuss BTHS. As a result, we made a unanimous decision to work together to find a cure for this multi-system disorder. Our Foundation strives to accelerate progress through collaboration between families and scientists. We encourage family participation in research. Also, we provide several ways to keep up-to-date about advances in science and medicine. Our principal education event is our biennial international scientific, medical and family conference, which brings together the largest number of individuals interested in Barth syndrome. Our Family Services team is continually developing new informational resources in response to the needs of families, individuals, and professionals working with those affected by Barth syndrome.

Proper citation: Barth Syndrome Foundation (RRID:SCR_010556) Copy   

•   Source: SciCrunch Registry

http://psidev.sourceforge.net/mi/xml/doc/user/index.html

The Proteomics Standards Initiative (PSI) aims to define community standards for data representation in proteomics to facilitate data comparison, exchange and verification. As a first step, the PSI is developing standards for two key areas of proteomics: mass spectrometry and protein-protein interaction data. The document describes the molecular interaction data exchange format. PSI is following a leveled approach to building this specification. Level 1 will describe protein interactions at a basic level that covers a large amount of currently available data. Subsequent levels will add capability to represent new molecular interaction information that the community wishes to exchange. The scope of PSI MI is currently limited to protein-protein interactions. Other molecules, such as small molecules, DNA and RNA maybe taken into account in the future. The PSI MI format is a data exchange format for protein-protein interactions. It is not a proposed database structure. The purpose of the document is to describe the general structure of the PSI MI XML specification in a more user-friendly manner than the specification does itself. PSI MI was designed by a group of people including representatives from database providers and users in both academia and industry. PSI MI is supported by the DIP, MINT, IntAct, BIND and HPRD databases.

Proper citation: PSI-MI (RRID:SCR_010710) Copy   

•   Source: SciCrunch Registry

http://www.blueprintnhpatlas.org/

Atlas of gene expression in the developing rhesus macaque brain. This atlas is a free online resource with a unique set of data and tools aimed to create a developmental neuroanatomical framework for exploring the cellular and molecular architecture of the developing postnatal primate brain with direct relevance for human brain development. The atlas includes: * Microarray ** Microdissection: Fine structure transcriptional profiling across postnatal development for fine nuclear subdivisions of the prefrontal cortex, primary visual cortex, hippocampus, amygdala and ventral striatum ** Macrodissection: Gross structure transcriptional profiling across postnatal development for the same structures * ISH: ** Cellular resolution in situ hybridization image data of five major brain regions during postnatal developmental periods for genes clinically important for a variety of human neurodevelopmental disorders, including prefrontal cortex, primary visual cortex, hippocampus, amygdala and ventral striatum. ** Serial analysis of selected genes across the entire adult brain, focusing on cellular marker genes, genes with cortical area specificity and gene families important to neural function. * ISH Anatomic Search: Detailed gene expression search on the ISH data based on expert annotation * Reference Data: Developmental stage-specific reference series, consisting of magnetic resonance imaging (MRI) and Nissl histology to provide a neuroanatomical context for the gene expression data. These data and tools are designed to provide a valuable public resource for researchers and educators to explore neurodevelopment in non-human primates, and a key evolutionary link between other Web-based gene expression atlases for adult and developing mouse and human brain.

Proper citation: NIH Blueprint NHP Atlas (RRID:SCR_010559) Copy   

•   Source: SciCrunch Registry

http://www.ntnu.edu/biotech/systembio

The new NTNU Systems Biology website showcases the different systems biology efforts at NTNU. Regular updates on new initiatives and advertisements for new PhD and Postdoc vacancies in systems biology will be posted.

Proper citation: NTNU Systems Biology (RRID:SCR_010713) Copy   

•   Source: SciCrunch Registry

http://www.allosource.org/

AlloSource is a non-profit organization founded in 1994 on a promise to honor and respect the gift of donation by responsibly developing, processing and distributing life-saving and life-enhancing allografts for our communities. Today, each of our 300 employees continues to fulfill this promise through multi-shift, 360-day processing to the highest quality and service standards. We strive to be the tissue network patients and the world''s most respected transplant teams ask for by name. This is accomplished by understanding the needs of our doctors and by providing the best tissue for our recipients. We offer more than 200 standard and customized precision allograft products, and act as a trusted and knowledgeable partner to the medical community, all with the intention of maximizing medical impact. In 1995, Allosource evolved from a local tissue bank in Denver, Colorado into a national organization serving communities around the country. Today, AlloSource is one of the largest, most respected tissue banks in the United States. Through our growth we''ve remained committed to the wishes of donor families, the needs of our surgeon customers, and the hopes of our patient recipients. Our promise of doing more with life reflects our unwavering focus on integrity, quality, safety, and respect today, and into the future.

Proper citation: AlloSource (RRID:SCR_010683) Copy   

•   Source: SciCrunch Registry

http://www.mssm.edu/research/programs/manhattan-hiv-brain-bank/

Biorepository of tissues and fluids relevant for the neurologic, neuropsychologic, psychiatric and neuropathologic manifestations of HIV infection, linked to medical records and an on-going clinical trial for research use by the scientific community. The MHBB conducts a longitudinal, observational study that follows a group of HIV-infected individuals who have agreed to be fluid and organ donors for the purposes of AIDS research. They are currently the largest, multidisciplinary neuroAIDS cohort in New York City, the epicenter of the US HIV epidemic. Research participants undergo regular neurologic, neuropsychologic, and psychiatric evaluations, and provide body fluid samples that are linked to clinical information. Upon their demise, study participants become organ donors. This program has supplied clinical information, tissue, and fluid samples to over 70 qualified AIDS researchers across America, Europe and Australia. In fulfilling its resource mission, the MHBB functions as part of the National NeuroAIDS Tissue Consortium (NNTC). MHBB provides a means by which people living with HIV can be engaged in the struggle to improve our knowledge about HIV infection and the damage it causes to the body.

Proper citation: Manhattan HIV Brain Bank (RRID:SCR_010520) Copy   

•   Source: SciCrunch Registry

http://brainandsociety.org/the-brain-observatory

Formerly a topical portal studying the brain which collected and imaged 1000 human brains, the Brain Observatory has partnered with the Institute for Brain and Society to build virtual laboratories that will feed directly into the database of images and knowledge created in the context of the Human Brain Library. The Brain Observatory will also host exhibits, conferences, and events aimed at promoting a heightened awareness of brain research and how its results can benefit personal brain fitness and mental health.

Proper citation: Brain Observatory (RRID:SCR_010641) Copy   

•   Source: SciCrunch Registry

http://www.prabi.fr/

The PRABI is the Rhone-Alpes Bioinformatics Center, a IBISA platform member of the RENABI (the French network of bioinformatic platforms). It gathers 11 research teams spread on 4 different sites. The PRABI has research, service and training activities in a large number of bioinformatics and biostatistics fields.

Proper citation: PRABI (RRID:SCR_010522) Copy   

•   Source: SciCrunch Registry

http://biomarkercommons.org/

Biomarker Commons aggregates news and research on disease biomarkers, and includes links to biomarker journals, resources and commercial services. There are a number of biomarkers in use today, not only in experimental research but in the clinical setting. * Translation biomarkers are used in both a preclinical (i.e. animal models) and clinical setting * Early detection biomarkers are used to identify the earliest stages of disease onset * Diagnostic biomarkers are used to identify the presence or absence of a specific disease state * Staging biomarkers are used to distinguish between different stages of a chronic disorder * Prognostic biomarkers are used to determine patient survival probability * Disease biomarkers are related to a clinical outcome or measure of disease * Predictive or efficacy biomarkers are used to predict the efficacy of a specific drug therapy * Target biomarkers are used to determine the interaction of a drug or small molecule with its target * Mechanism biomarkers are used to report on the downstream effects of a drug * Toxicity biomarkers are used to determine the toxicological effects of drugs on an in vitro or in vivo system * Surrogate biomarkers are regarded as valid substitutes for measuring clinical outcomes Users may search biomarker news (search by tags, news archive. or insights), sign up for biomarker news email alerts, follow biomarker commons and view biomarker news top tags

Proper citation: Biomaker Commons (RRID:SCR_010645) Copy   

•   Source: SciCrunch Registry

http://www.emif.eu/

A project that aims to improve access to human health data by developing a common information framework (EMIF-Platform) that allows for efficient re-use of existing health data, opening up new avenues of research for scientists. To ensure immediate applicability, the project includes two specific therapeutic research topics: the onset of Alzheimer's Disease (EMIF-AD) and metabolic complications of obesity (EMIF-Metabolics). The AD Topic aims to discover and validate biomarkers of AD onset in the preclinical and prodromal phase as well as for disease progression and identify high-risk individuals for therapeutic trials for prevention. The Metabolic Topic aims to discover and evaluate biomarkers for the risk of metabolic complications in obesity and to identify high-risk populations for intervention purposes. Collaboration between the 3 topics will ensure the development and delivery of an efficient Information Framework. This initiative has combined several data sets for neuroimaging including ADNI and several others, curating them into transmart.

Proper citation: EMIF (RRID:SCR_010495) Copy   

•   Source: SciCrunch Registry

http://www.alkermes.com/

A biopharmaceutical company that focuses on central nervous system (CNS) diseases. The company is the result of a merger between Alkermes, Inc. and Elan Drug Technologies (EDT), the former drug formulation and manufacturing division of Elan Corporation, plc. The company is headquartered in Dublin, and has an R&D center in Waltham, Massachusetts and manufacturing facilities in Athlone, Ireland; Gainesville, Georgia; and Wilmington, Ohio. Alkermes has more than 20 commercial drug products and candidates that address serious and chronic diseases such as addiction, schizophrenia, diabetes and depression. Among these, five products are primary to the company: risperidone Long-Acting Injection (Risperdal Consta) for schizophrenia and bipolar 1 disorder, paliperidone palmitate (Invega Sustenna in the U.S., Xeplion in Europe) for schizophrenia, 4-aminopyridine (Ampyra in the U.S., Fampyra in Europe) to improve walking in patients with multiple sclerosis, naltrexone for extended-release injectable suspension (Vivitrol) for alcohol and opioid dependence, and exenatide extended-release for injectable suspension (Bydureon) for the treatment of type 2 diabetes. Bydureon is a once-weekly, long-acting form of the drug exenatide (Byetta) and was developed through a partnership between Amylin, Alkermes and Eli Lilly. It is approved in Europe and the U.S. (Wikipedia)

Proper citation: Alkermes (RRID:SCR_010497) Copy   

•   Source: SciCrunch Registry

http://downsyndrome.ucsd.edu/index.php

The Down Syndrome Center for Research and Treatment (DSCRT) is one of the first programs in the country to connect academic research with treatment of adults and children with Down syndrome. Our goal is to apply cutting edge basic research to develop treatments that will help people with Down syndrome improve their cognition and forestall the onset of Alzheimer''s disease. Members of this special population continue to live fuller, healthier lives. We hope to build on this progress and advance their potential even further. About 400,000 people with Down syndrome live in the U.S. today, and one in every 733 babies is born with the condition. Children with Down syndrome are at risk for congenital heart defects, respiratory and hearing problems, childhood leukemia, and thyroid conditions. They typically also have mild to moderate cognitive impairment that affects learning, memory and speech. This is an important topic for research. With increased health care, education, and societal support, people with Down syndrome are living longer, fuller lives. But as they age we are discovering an increased occurrence of the symptoms associated with Alzheimer''s disease. In fact, about 25 percent of individuals with Down syndrome over age 35 increasingly show clinical signs and symptoms of Alzheimer''s type dementia. By age 60, more than half show cognitive decline.

Proper citation: Down Syndrome Center for Research and Treatment (RRID:SCR_010627) Copy   

•   Source: SciCrunch Registry

http://www.horizonpress.com/gateway/

Molecular Biology Gateway is the gateway to Web resources for molecular biology, genomics, PCR, protocols, microbiology, and biochemistry. Major categories include: Current Molecular Biology News, Microbiology, Virology, Genomics and Bioinformatics, PCR, Journals, Books, and other Publications, Protocols, Technology, Books, and Recommended Reading.

Proper citation: Molecular Biology Gateway (RRID:SCR_010628) Copy   

•   Source: SciCrunch Registry

http://icy.bioimageanalysis.org/

An open community platform for bioimage informatics providing the software resources to visualize, annotate and quantify bioimaging data. To bridge the gap between developers and users, it combines: a) an open-source image analysis software, offering a powerful and flexible environment for developers such as applied mathematicians to write algorithms fast and efficiently; b) a common set of tools to view and manipulate data, and a set of plugins to perform specific quantification or analysis on images; c) a community-based website centralizing all plugins and resources to facilitate their management and maximize their visibility towards users. Workspaces are virtual groups of plugins dedicated to a specific application or image processing domain. By downloading a workspace, ICY automatically installs all corresponding plugins. The workspaces are enabled, but the editing section is not ready yet. If you want to publish a plugin on this website, its code has to be GPL. Source code is available and provided in each application download.

Proper citation: icy (RRID:SCR_010587) Copy   

•   Source: SciCrunch Registry

http://scienceexchange.com/

Access service resource which connects labs needing and offering experimental services. Users can search for academic and government labs and experimental services, request and compare service quotes, and directly communicate with labs to arrange orders.

Proper citation: ScienceExchange (RRID:SCR_010620) Copy   

•   Source: SciCrunch Registry

http://www.diffusiontools.com/documentation/poas.html

Software toolbox for SPM to denoise diffusion MRI data. Used for diffusion weighted magnetic resonance imaging data enhancement based on structural adaptive smoothing in both voxel space and diffusion-gradient space.Part of the ACID-toolbox.

Proper citation: POAS4SPM (RRID:SCR_010469) Copy   

•   Source: SciCrunch Registry

https://scicrunch.org/scicrunch/data/source/nlx_154697-18/search?q=*&l=

A virtual database cataloging numerous data set resources, including: BrainMaps.org, Cell Centered Database, Clinical Trials Network (CTN) Data Share, ClinicalTrials.gov, CRCNS, Gene Expression Omnibus, ArrayExpress, MPD - Mouse Phenome Database, BioSharing, Gene Weaver, XNAT Central, 1000 Functional Connectomes Project, Health.Data.gov, SciCrunch Registry, NIF Registry Automated Crawl Data, NeuroVault, OpenfMRI, Physiobank, RanchoBiosciences, YPED, Data.gov Science, and Research Data Catalog.

Proper citation: Integrated Datasets (RRID:SCR_010503) Copy   

•   Source: SciCrunch Registry

http://databrary.org/

Project aims to promote data sharing, archiving, and reuse among researchers who study human development. Focuses on creating tools for scientists to store, manage, preserve, analyze and share video and related data.

Proper citation: Databrary (RRID:SCR_010471) Copy   

•   Source: SciCrunch Registry

http://mvz.berkeley.edu/

The Museum of Vertebrate Zoology (MVZ) at the University of California, Berkeley, is a center for research and education in the biology of amphibians, reptiles, birds, and mammals. Founded in 1908, the Museum''s mission is to document and increase understanding of the diversity of terrestrial vertebrates, with particular emphasis on western North America. An MVZ Video Gallery is also available. The superb collections are at the heart of the MVZ program, where methods of field biology are combined with modern laboratory techniques and analytical methods in a comprehensive, synthetic approach. Our goals are to remain at the forefront of international research on evolutionary biology from the perspectives of systematics, ecology, behavior, functional and developmental morphology, population biology, and evolutionary genomics, and to lead the way in developing and using major natural history collections for research, education, and solving problems in biodiversity conservation. Because the MVZ was founded upon a philosophy that organisms should be studied in relationship to their natural environments, its collections are supplemented by extensive ancillary information (e.g., field notes, habitat photographs, tape-recorded vocalizations) that is connected to specimens and/or tissues and enhances their value to researchers. This concept was pioneered at the MVZ and continues to be the primary focus of current research efforts. To this end, there are strong research links between the Museum and the 2,000 acre MVZ/UC field station at Hastings Natural History Reservation. In addition, the MVZ is actively engaged in developing concepts and tools for Biodiversity Informatics through collaborations across the Berkeley Natural History Museums and international consortia.

Proper citation: Museum of Vertebrate Zoology (RRID:SCR_010595) Copy   

•   Source: SciCrunch Registry

http://www.clinfowiki.org/wiki/index.php/Main_Page

A Wiki devoted to topics in clinical informatics. Contents: 1 Health Information Technology Regional Extension Centers 2 Free and Open Source Software (FOSS) licensing in medicine 3 Electronic Healthcare Communication 4 Electronic Medical Record (EMR) Systems 5 Computer-based Provider Order Entry -- CPOE 6 Clinical Decision Support -- CDS 7 Books on Topics in Clinical Informatics 8 Medical Devices, Computerized -- SmartDevices 9 Personal Health Records -- PHRs 10 Personal Health Applications -- PHAs 11 Informatics Students'' Contributions 12 Blueprint for a Comprehensive HIT System 13 Biobanking -- a.k.a. Biorepositories or Tissue Banks 14 Organizational issues 15 Regional Health Information Organizations -- RHIOs 16 Evidence-Based Medicine -- EBM 17 Evaluation Methods in Informatics 18 Unintended Consequences of Health Information Technology 19 Quality & Quality Informatics 20 Public Health Informatics 21 U.S. Federal Health Information Technology Initiatives 22 The E-Patient-Provider Relationship 23 Interface Terminology 24 New CIS-related Technologies 25 Workflow 26 Terminology and Coding 27 Interface/Usability Testing 28 International views 29 Blogposium, April 2006 30 Departments / Schools of Biomedical or Medical Informatics 31 Endowed Professorships and Chairs in Health / Medical / Nursing / Biomedical Informatics 32 Leading Health Informatics and Medical Informatics Journals o 32.1 Ranking of ISI/SCI listed e-Health and Medical Informatics Journals o 32.2 Not listed / ranked in ISI/SCI 33 External Links 34 External Medical Reference Links 35 External Informatics Organizations Links

Proper citation: Clinical Informatics Wiki (RRID:SCR_010518) Copy   

•   Source: SciCrunch Registry