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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Central Brain Tumor Registry of the United States Resource Report Resource Website 10+ mentions |
Central Brain Tumor Registry of the United States (RRID:SCR_008748) | CBTRUS | nonprofit organization | Voluntary, non-profit organization dedicated to collecting and disseminating statistical data. Resource for gathering and disseminating epidemiologic data on all primary benign and malignant brain and other CNS tumors. | human, brain, tumor, cancer, central nervous system, epidemiology, incidence, survival, diagnosis, treatment, benign, malignant, registry, epidemiological data, aggregator, clinical, statistics, population, histology, age, gender, race, hispanic, mortality | Brain tumor, Aging | American Brain Tumor Association ; National Brain Tumor Society ; Pediatric Brain Tumor Foundation ; NCI contract HHSN261201000576P |
PMID:23095881 | Application required., The community can contribute to this resource | grid.492337.8, ISNI: 0000 0004 0484 2205, nlx_143889 | https://ror.org/03849s113 | SCR_008748 | 2026-09-12 12:57:08 | 26 | |||||
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Tissue Access for Patient Benefit Resource Report Resource Website |
Tissue Access for Patient Benefit (RRID:SCR_008853) | TAPb, TAPB | data or information resource, portal, topical portal | We aim to facilitate the pathway for access, storage, use and transfer of human organs, cells and tissue between clinical centers within UCL Partners, academic groups in UCL, other universities, hospitals, medical researcher and biotechnology companies, to enhance the ability for researchers to access the materials they need. Alongside this, researchers will be able to exchange information and access guides on regulatory, ethics and practical issues concerning access, transfer and use of this type of material. These guides will be video and documents format, based on talks at organized events given by experts in the relevant fields. All of this information will be accessible on a website that seeks to link groups within UCL and attract attention from the wider world through social media and expansion of existing contacts. Our vision is to develop a centralized human tissue provision and utilization service for academic and commercial researchers UCL has the highest concentration of biomedical researchers in Europe. As part of this, UCL has numerous licensed biobanks and is associated with many research intensive hospitals in North London. The role of a biobank is to prepare and hold human tissue samples in for use by medical researchers to help delivery new treatments. Hospitals can also provide human tissue for research by utilizing waste human tissue taken as part of surgery or diagnostic procedures, but is normally incinerated. The researchers using the human tissue could be working within academic laboratories in UK universities and institutions or as part of commercial companies. Researchers currently cannot easily access human tissue to meet the demands of their research, often due to the long ethical, regulatory and contractual processes. However, with the enormous UCL biobanking and research Hospital resources, UCL could be a leading academic institution in providing human tissue for medical research within the UK and internationally. Our vision is to develop a centralized human tissue provision and utilization service for academic and commercial researchers. This relies on creating an overarching infrastructure, to consolidate information on disparate human tissue resources around UCL, and (where possible) gain centralized ethical and regulatory and contractual approval for use of the tissue. Funding the infrastructure will rely on a cost recovery model for a per sample basis. As a result the time needed to obtain tissue for research will be dramatically reduced, whilst providing a simple costing model for obtaining human tissue. This will make human tissue procurement much more efficient for end users. | has parent organization: University College London; London; United Kingdom | nlx_149096 | SCR_008853 | UCL - Tissue Access for Patient Benefit | 2026-09-12 12:57:09 | 0 | |||||||||
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Clinical Outcomes Research Initiative Resource Report Resource Website 1+ mentions |
Clinical Outcomes Research Initiative (RRID:SCR_009010) | CORI | data or information resource, database, resource, service resource, software resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on December 5, 2022. Endoscopic Reporting Software, aggregated and individual research data and tailor-made services aimed to advance the overall practice of endoscopy. It was developed to study outcomes of gastrointestinal (GI) endoscopic procedures in real life settings, using data obtained from the CORI Endoscopic Reporting Software or from other endoscopic reporting software. Practice sites include hospitals, ambulatory care centers, private practices, universities, and Veteran''''s hospitals (VA''''s). The CORI v4 Endoscopic Reporting Software is a specialty Electronic Health Record used to document endoscopic procedures and provide reporting services to your practice. Data from participating providers is also sent to a central data repository to become part of the National Endoscopic Database (NED), which now contains data from over 2.7 million GI procedures. The CORI v4 Endoscopic Reporting Software offers significant benefits for participating practices, providers and patients, as well as for everyone who benefits from CORI''''s research efforts. You may actively participate in research with CORI. If you have ideas for research using the NED, their research team can help you evaluate those ideas, collect and analyze the data. In addition, you may choose to participate in one of the prospective research projects conducted by CORI research staff. | clinical, endoscopy, gastroenterology, gastrointestinal, endoscopic, endoscopy reporting software, outcome, report, electronic health record, aggregator |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources has parent organization: Oregon Health and Science University; Oregon; USA |
NIDDK | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152692 | SCR_009010 | 2026-09-12 12:57:11 | 6 | |||||||
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OriGene Resource Report Resource Website 500+ mentions |
OriGene (RRID:SCR_008985) | OriGene | commercial organization | A research tool company focused on the creation of the largest commercial collection of full-length human cDNAs in a standard expression vector. The availability of the complete human genome sequence and the subsequent development of genome-based tools have enabled the identification of relevant drug targets through system biology approaches. OriGene''s vision is to prepare comprehensive, genome wide research tools and technology platforms to enable scientists to study complete biological pathways, thus enabling a better understanding of disease mechanisms including cancer and stem cell research. OriGene Technologies uses high-throughput, genome wide approach to develop products for pharmaceutical, biotechnology, and academic research. Their flagship product is the cDNA clone collection, a searchable gene bank of over 30,000 human full-length TrueClone cDNA collection and over 25,000 TrueORF cDNA clones. From their TrueORF cDNA clones, they have developed the largest offering of full length human proteins expressed in mammalian cells, ideal for functional studies. Their TrueMAB project develops mouse monoclonal antibodies against protein antigens with the goal to develop protein assays for every human protein. They also offer complete molecular biology services from codon optimization, gene synthesis, protein expression and assay development. In addition, they offer unique gene expression products such as TissueScan cancer tissue qPCR arrays and tissue biorepository for biomarker discovery and validation. |
is listed by: ScienceExchange is listed by: One Mind Biospecimen Bank Listing is related to: Origene China |
nlx_152424, SciEx_9281 | https://www.scienceexchange.com/facilities/origene-technologies-inc | SCR_008985 | OriGene Technologies Inc., OriGene Technologies | 2026-09-12 12:57:11 | 789 | ||||||||
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Renal Disease Portal Resource Report Resource Website |
Renal Disease Portal (RRID:SCR_009030) | Renal Disease Portal | data or information resource, data set, disease-related portal, portal, topical portal | An integrated resource for information on genes, QTLs and strains associated with a variety of kidney and renal system conditions such as Renal Hypertension, Polycystic Kidney Disease and Renal Insufficiency, as well as Kidney Neoplasms. | gene, quantitative trait locus, strain, renal hypertension, kidney neoplasm, phenotype, pathway, biological process, disease, kidney, genome, gviewer, chromosome, molecular function, cellular component, visualization, synteny |
is related to: NIDDK Information Network (dkNET) is related to: Gene Ontology has parent organization: Rat Genome Database (RGD) |
Renal disease, Renal hypertension, Polycystic kidney disease, Renal insufficiency, Kidney neoplasm, Diabetes Insipidus, Hyperoxaluria, Renal hypertension, Nephritis, Nephrocalcinosis, Nephrolithiasis, Nephrosis, Renal Fibrosis, Inborn Error of Renal Tubular Transport, Uremia | nlx_153941 | SCR_009030 | RGD Renal Disease Portal | 2026-09-12 12:57:11 | 0 | |||||||
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GRDR Resource Report Resource Website 1+ mentions |
GRDR (RRID:SCR_008978) | GRDR, RaDaR | data or information resource, data repository, database, patient registry, people resource, service resource, storage service resource | Data repository of de-identified patient data, aggregated in a standardized manner, to enable analyses across many rare diseases and to facilitate various research projects, clinical studies, and clinical trials. The aim is to facilitate drug and therapeutics development, and to improve the quality of life for the many millions of people who are suffering from rare diseases. The goal of GRDR is to enable analyses of data across many rare diseases and to facilitate clinical trials and other studies. During the two-year pilot program, a web-based template will be developed to allow any patient organization to establish a rare disease patient registry. At the conclusion of the program, guidance will be available to patient groups to establish a registry and to contribute de-identified patient data to the GRDR repository. A Request for Information (RFI) was released on February 10, 2012 requesting information from patient groups about their interest in participating in a GRDR pilot project. ORDR selected 30 patient organizations to participate in this pilot program to test the different functionalities of the GRDR. Fifteen (15) organizations with established registries and 15 organizations that do not have patient registry. The 15 patient groups, each without a registry, were selected to assist in testing the implementation of the ORDR Common Data Elements (CDEs) in the newly developed registry infrastructure. These organizations will participate in the development and promotion of a new patient registry for their rare disease. The GRDR program will fund the development and hosting of the registry during the pilot program. Thereafter, the patient registry is expected to be self-sustaining.The 15 established patient registries were selected to integrate their de-identified data into the GRDR to evaluate the data mapping and data import/export processes. The GRDR team will assist these organizations in mapping their existing registry data to the CDEs. Participating registries must have a means to export their de-identified registry data into a specified data format that will facilitate loading the data into the GRDR repository on a regular basis. The GRDR will also develop the capability to link patients'''' data and medical information to donated biospecimens by using a Voluntary Global Unique Patient Identifier (GUID). The identifier will enable the creation of an interface between the patient registries that are linked to biorepositories and the Rare Disease Human Biospecimens/Biorepositories (RD-HUB) http://biospecimens.ordr.info.nih.gov/. | clinical, common data element, global unique patient identifier, clinical trial, drug development, therapy |
is related to: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) is related to: NIH Data Sharing Repositories has parent organization: Office of Rare Diseases Research |
Rare disease | NIH | Public, The community can contribute to this resource | nlx_152145 | http://www.grdr.info/ | SCR_008978 | Rare Diseases Registry Program (RaDaR), Global Rare Diseases Patient Registry and Data Repository | 2026-09-12 12:57:11 | 1 | ||||
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Mind Lab Resource Report Resource Website |
Mind Lab (RRID:SCR_009025) | Mind Lab | data or information resource, image collection, video resource | Interactive laboratory of the mind composed of 4 themed sessions housing four short introductory movies and sixteen trials with those you can experience visual phenomena and illusions used for study in psychological experiments. | visual illusion, sensory perception, visual phenomena, psychological experiment, vision | has parent organization: Japan Science and Technology Agency | nlx_153853 | http://jvsc.jst.go.jp/find/mindlab/english/ | SCR_009025 | JST Virtual Science Center Mind Lab | 2026-09-12 12:57:11 | 0 | |||||||
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Digital Ageing Atlas Resource Report Resource Website 10+ mentions |
Digital Ageing Atlas (RRID:SCR_009020) | DAA | data or information resource, data repository, database, service resource, storage service resource | Database of age-related changes covering different biological levels, including molecular, physiological, psychological and pathological age-related data, to create an interactive portal that serves as a centralized collection of human aging changes and pathologies. To facilitate integrative, system-level studies of aging, the DAA provides a centralized source for aging-related data as well as basic tools to query and visualize the data, including anatomical models. Data in the DAA is manually curated from the literature and retrieved from public databases. For more detailed analyses users are able to download the entire database. More information on how to use the DAA is available on the help page. The DAA primarily focuses on human aging, but also includes supplementary mouse data, in particular gene expression data, to enhance and expand the information on human aging. If you would like to contribute to the database yourself, for instance if you have new data on aging, please use the contribute page to submit your data. | late adult human, anatomy, gene, molecular, pathological, physiological, psychological, tissue, reference, cellualar, gene expression | has parent organization: University of Liverpool; Liverpool; United Kingdom | Aging | The community can contribute to this resource, Creative Commons Attribution License, v3 Unported | nlx_153874 | SCR_009020 | Digital Aging Atlas | 2026-09-12 12:57:11 | 15 | ||||||
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INVIZIAN Resource Report Resource Website 1+ mentions |
INVIZIAN (RRID:SCR_009549) | INVIZIAN | data processing software, data visualization software, software application, software resource | A visualization environment that enables you, via your computer, to display and interact with hundreds of neuroimaging data sets at once ?bringing together brain image data from some of the world?s best neuroscience research teams. INVIZIAN empowers both researchers and students of neuroscience to explore and understand the human brain using a simple yet powerful user interface for neuroimaging data exploration and discovery. See a beautiful example of a cloud of individual brains tumbling around in the INVIZIAN interface in Vimeo (http://vimeo.com/67984681). Visit often to see how we are making continuing progress to make Invizian even more amazing. | magnetic resonance |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: Laboratory of Neuro Imaging |
LONI Software License | nlx_155775 | http://www.nitrc.org/projects/invizian | SCR_009549 | Informatics Visualization in Neuroimaging | 2026-09-12 12:57:13 | 1 | ||||||
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Bionutrition Ontology Resource Report Resource Website 1+ mentions |
Bionutrition Ontology (RRID:SCR_010272) | BNO | controlled vocabulary, data or information resource, ontology | Ontology that relates concepts and terminologies used for human nutrition in a clinical and biomedical setting. | owl | is listed by: BioPortal | nlx_157337 | SCR_010272 | 2026-09-12 12:57:16 | 1 | |||||||||
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Ontology for Newborn Screening Follow-up and Translational Research Resource Report Resource Website |
Ontology for Newborn Screening Follow-up and Translational Research (RRID:SCR_010389) | ONSTR | controlled vocabulary, data or information resource, ontology | Application ontology covering the domain of newborn screening, follow-up and translational research pertaining to patients diagnosed with inheritable and congenital diseases mainly identified through newborn dried blood spot screening. ONSTR is a central component of the project Newborn Screening Follow-up Data Integration Collaborative (NBSDC), https://nbsdc.org. ONSTR uses the Basic Formal Ontology v2 (BFO2, v2012-07-20) as top-level ontology and extends the classes imported from OBO Foundry ontologies and candidate ontologies. | owl, newborn | is listed by: BioPortal | Inheritable disease, Congenital disease | nlx_157520 | SCR_010389 | 2026-09-12 12:57:18 | 0 | ||||||||
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Pediatric Terminology Resource Report Resource Website |
Pediatric Terminology (RRID:SCR_010395) | PEDTERM | controlled vocabulary, data or information resource, ontology | Terms associated with pediatrics, representing information related to child health and development from pre-birth through 21 years of age; contributed by the National Institute of Child Health and Human Development. | owl | is listed by: BioPortal | Aging | nlx_157545 | SCR_010395 | 2026-09-12 12:57:18 | 0 | ||||||||
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Traditional Medicine Constitution Value Set Resource Report Resource Website |
Traditional Medicine Constitution Value Set (RRID:SCR_010435) | TM-CONST | controlled vocabulary, data or information resource, ontology | Ontology of the value set for the constitution property of the International Classification of Traditional Medicine (ICTM). | owl | is listed by: BioPortal | nlx_157612 | SCR_010435 | 2026-09-12 12:57:19 | 0 | |||||||||
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Pathogenic Disease Ontology Resource Report Resource Website |
Pathogenic Disease Ontology (RRID:SCR_010405) | PDO | controlled vocabulary, data or information resource, ontology | An ontology for describing both human infectious disease caused by bacteria and the disease that is related to bacterial infection. | owl | is listed by: BioPortal | Infectious disease, (caused by bacteria), Bacterial infection related disease | nlx_157543 | SCR_010405 | 2026-09-12 12:57:18 | 0 | ||||||||
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National Drug Code Directory Resource Report Resource Website |
National Drug Code Directory (RRID:SCR_013721) | ndc | Drug database published by the Food and Drug Administration of unique universal product identifiers for all drugs manufactured, prepared, propagated, compounded, or processed by it for commercial distribution. | drug database, drug code, FDA | Free, public | SCR_013721 | 2026-09-12 12:58:08 | 0 | |||||||||||
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Approved Drug Products with Therapeutic Equivalence Evaluations Resource Report Resource Website 1+ mentions |
Approved Drug Products with Therapeutic Equivalence Evaluations (RRID:SCR_013727) | Orange Book | Database that contains drug products approved on the basis of safety and effectiveness by the Food and Drug Administration. | drugs, prescription drug, over-the-counter drug, OTC drug, Drug Products |
is listed by: U.S. Food and Drug Administration has parent organization: U.S. Food and Drug Administration |
Free, public | SCR_013727 | 2026-09-12 12:58:08 | 2 | ||||||||||
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Biospecimen Repository and Processing Core Resource Report Resource Website |
Biospecimen Repository and Processing Core (RRID:SCR_013792) | BRPC | information resource | A biomaterial supply and access service resource which provides a shared resource for coordinated tissue processing and biorepository services. Services include patient identification and informed consent, specimen collection, processing and banking, and annotation of banked specimens and specimen distribution. They provide biospecimen inventory management, services, and equipment. It is a shared resource of Duke University. | repository, biomaterial supply resource, shared resource, Duke University, biospecimen, tissue, tissue processing, informed consent, biobank |
is related to: Duke Cancer Institute is related to: Duke Biobank is related to: Duke University School of Medicine; North Carolina; USA has parent organization: Duke University; North Carolina; USA |
Available to the research and education community, Fee | http://www.dukecancerinstitute.org/research/shared-resources/Biospecimen%20Repository%20and%20Processing%20Core | SCR_013792 | 2026-09-12 12:58:09 | 0 | ||||||||
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National Database for Clinical Trials related to Mental Illness Resource Report Resource Website 1+ mentions |
National Database for Clinical Trials related to Mental Illness (RRID:SCR_013795) | NDCT | data resource | A database which houses human subjects clinical trial data. NDCT currently contains data on 13,409 subjects and has access to data on 100,500 subjects from the NIMH Data Archive. Users can also sign up for news updates and watch video tutorials. | database, human, clinical trial, mental health, mental illness |
uses: NIMH Data Archive uses: RDoCdb is listed by: NIH Data Sharing Repositories is related to: NIMH Data Archive is related to: RDoCdb is related to: RDoCdb |
NIH | Public, Only for research | SCR_013795 | 2026-09-12 12:58:09 | 2 | ||||||||
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Multi-Disciplinary Approach to the Study of Chronic Pelvic Pain Resource Report Resource Website 100+ mentions |
Multi-Disciplinary Approach to the Study of Chronic Pelvic Pain (RRID:SCR_013754) | MAPP | data or information resource, disease-related portal, portal, topical portal | Collaborative research network specializing in urological chronic pelvic pain disorders. Project involves conducting research primarily on interstitial cystitis/painful bladder syndrome and chronic prostatitis/chronic pelvic pain syndrome and involves researchers from multiple disciplines. MAPP Network includes researchers with clinical, epidemiological, and basic research expertise. | interstitial cystitis, painful bladder syndrome, chronic prostatitis, chronic pelvic pain syndrome, chronic pelvic pain |
is listed by: Collaborating for the Advancement of Interdisciplinary Research in Benign Urology is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
interstitial cystitis/painful bladder syndrome, IC/PBS, chronic prostatitis/chronic pelvic pain syndrome, CP/CPPS | Free, Freely available | SCR_014375 | SCR_013754 | Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network, MAPP Research Network | 2026-09-12 12:58:08 | 189 | ||||||
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Immune Tolerance Network TrialShare Resource Report Resource Website 10+ mentions |
Immune Tolerance Network TrialShare (RRID:SCR_013699) | ITN TrialShare, TrialShare | clinical trial, data or information resource, data repository, service resource, storage service resource | Immune tolerance data management and visualization portal for studies sponsored by Immune Tolerance Network (ITN) and collaborating investigators. Data from published studies are accessible to any user; data from current in-progress studies are accessible to study investigators and collaborators. Includes links to published Figures, tools for visualization and analysis of data, and ability to query study data by subject, group, or any other study parameter. | clinical trial, clinical data, biological specimens, |
is recommended by: National Library of Medicine is related to: Immune Tolerance Network (ITN) |
Type 1 diabetes, Diabetes, Allergy, Asthma, Autoimmune disease, Transplantation, Immunological disorder | NIAID | Restricted | https://www.itntrialshare.org/login/home/login.view?returnUrl=%2Fproject%2Fhome%2Fstart.view%3F | SCR_013699 | , ITN, TrialShare, Trial Share, Immune Tolerance Network | 2026-09-12 12:58:07 | 29 |
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The NIDDK Information Network (dkNET) serves the needs of basic and clinical investigators by providing seamless access to large pools of data and research resources relevant to the mission of The National Institute of Diabetes Digestive and Kidney Diseases (NIDDK). dkNET is hosted at University of California San Diego, and is supported by NIH NIDDK grant U24DK097771.
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