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URL: http://rarediseasesnetwork.epi.usf.edu/porphyrias/
Proper Citation: Porphyria Consortium (RRID:SCR_014379)
Description: A consortium which includes five of the leading porphyria centers in the United States that provide expertise and experience in the diagnosis and treatment of patients with porphyria. The staff in each Center includes porphyria physicians, researchers, research coordinators, and technical/laboratory staff. Together with the American Porphyria Foundation, the Porphyrias Consortium enables a large scale collaborative effort to develop strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from these rare disorders.
Synonyms: Porphyrias Consortium, The Porphyria Consortium
Keywords: diagnosis, treatment, porphyria, rare disorder
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