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URL: http://www.childrennetwork.org/
Proper Citation: Childhood Liver Disease Research and Education Network (RRID:SCR_001497)
Description: Database of clinical information and serum and tissue samples from children across the United States and Canada with Biliary Atresia, Idiopathic Neonatal Hepatitis, Cystic Fibrosis Liver Disease, Alagille Syndrome, Alpha-1 Antitrypsin Deficiency, Bile Acid Synthesis Defects, Mitochondrial Hepatopathies, and Progressive Familial Intrahepatic Cholestasis in order to facilitate research and to perform clinical, epidemiological, and therapeutic trials in these important pediatric liver diseases. Three NIDDK-funded consortia, Biliary Atresia Research Consortium (BARC), Cholestatic Liver Disease Consortium (CLiC), and the Cystic Fibrosis Liver Disease (CFLD) Network were consolidated to form ChiLDREN. Most of the ChiLDREN studies are natural history studies aimed at acquiring information and data that will provide a better understanding of these rare conditions. Participants will be asked to allow study personnel to obtain information from medical records and an interview, and to collect blood, urine, and tissue samples when clinically indicated, in order to understand the causes of these diseases and to improve the diagnosis and treatment of children with these diseases. All of the information obtained in these studies is confidential and no names or identifying information are used in the study.
Abbreviations: ChiLDREN
Synonyms: Childhood Liver Disease Research and Education Network (ChiLDREN)
Resource Type: biomaterial supply resource, material resource, tissue bank
Keywords: child, clinical, epidemiology, therapy, pediatric, young human, rare disease, diagnostics, treatment, infant, liver, longitudinal, gall bladder, bile duct, small intestine, colon, lymph node, blood, urine, tissue, serum, plasma, dna, bile, liver tissue, gall bladder tissue, bile duct tissue, small intestine tissue, colon tissue, lymph node tissue
Related Condition: Biliary Atresia, Idiopathic Neonatal Hepatitis, Cystic Fibrosis Liver Disease, Alagille Syndrome, Alpha-1 Antitrypsin Deficiency, Bile Acid Synthesis Defect, Mitochondrial Hepatopathy, Progressive Familial Intrahepatic Cholestasis, Liver disease, Metabolism defect, Cholestasis
Funding: NIDDK 2U01DK062456
Resource Name: Childhood Liver Disease Research and Education Network
Resource ID: SCR_001497
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Source: SciCrunch Registry (RRID:SCR_005400)
Description: Interactive portal for finding and submitting biomedical resources. Resources within SciCrunch have assigned RRIDs which are used to cite resources in scientific manuscripts. SciCrunch Registry, formerly NIF Registry, provides resources catalog. Allows to add new resources. Allows edit existing resources after registration. Curators are tasked with identifying and registering resources, examining data, writing configuration files to index and display data and keeping contents current.
URL: https://rrid.site/rin/sources/SCR_005400
The NIDDK Information Network (dkNET) serves the needs of basic and clinical investigators by providing seamless access to large pools of data and research resources relevant to the mission of The National Institute of Diabetes Digestive and Kidney Diseases (NIDDK). dkNET is hosted at University of California San Diego, and is supported by NIH NIDDK grant U24DK097771.
Email: info_at_ dknet.org
